A Live Chat with Leroy Sievers

3:01

Andy Carvin:

Welcome to the Leroy Sievers chat, everyone! The show will begin in about 6 minutes, after the headlines.

Wednesday July 9, 2008 3:01 Andy Carvin

3:02

[Comment From KateKate: ]

So is this live yet?

Wednesday July 9, 2008 3:02 Kate

3:02

[Comment From Cristina BarthelCristina Barthel: ]

I have clicked on the link provided on the blog but do not get the leroy talk I get the morning edition...are we not able to listen to Leroy live on line?

Wednesday July 9, 2008 3:02 Cristina Barthel

3:02

Andy Carvin:

Leroy won't be on for a few more mins.

Wednesday July 9, 2008 3:02 Andy Carvin

3:02

[Comment From GuestGuest: ]

It seems so

Wednesday July 9, 2008 3:02 Guest

3:02

Andy Carvin:

The first hour is the Talk of the Nation Broadcast, then the livechat w/ Leroy.

Wednesday July 9, 2008 3:02 Andy Carvin

3:03

Andy Carvin:

Are you able to hear the newscast stream?

Wednesday July 9, 2008 3:03 Andy Carvin

3:03

[Comment From Cristina BarthelCristina Barthel: ]

i can hear the moring edition

Wednesday July 9, 2008 3:03 Cristina Barthel

3:03

[Comment From francescafrancesca: ]

but will lerou speak during this hour or only at 4 EST ?? I am in Switzerland... 9 pm here

Wednesday July 9, 2008 3:03 francesca

3:03

Andy Carvin:

Morning Edition was on til a few mins ago. Now it's headlines, then Talk of the Nation at 6 mins past the hour.

Wednesday July 9, 2008 3:03 Andy Carvin

3:04

[Comment From ChrisChris: ]

A newscast is playing but the intro was from Morning Edition

Wednesday July 9, 2008 3:04 Chris

3:04

[Comment From LauraLaura: ]

yes

Wednesday July 9, 2008 3:04 Laura

3:04

Andy Carvin:

Hopefully it'll switch over at 6 mins after. Hang tight.

Wednesday July 9, 2008 3:04 Andy Carvin

3:04

[Comment From Cristina BarthelCristina Barthel: ]

OH GREAT!

Wednesday July 9, 2008 3:04 Cristina Barthel

3:04

[Comment From Cristina BarthelCristina Barthel: ]

Great. Than it should work! Thanks I will keep refreshing.

Wednesday July 9, 2008 3:04 Cristina Barthel

3:04

[Comment From francescafrancesca: ]

cant wait

Wednesday July 9, 2008 3:04 francesca

3:05

Andy Carvin:

yeah, this is all rather fly-by-the-seat-of-our-pants, so we'll see how this works.

Wednesday July 9, 2008 3:05 Andy Carvin

3:05

[Comment From francescafrancesca: ]

incredible how we all feel that we are about to listen to a good/old friend...

Wednesday July 9, 2008 3:05 francesca

3:05

[Comment From Cristina BarthelCristina Barthel: ]

lol :) let's hope it does :)

Wednesday July 9, 2008 3:05 Cristina Barthel

3:05

[Comment From HelenaHelena: ]

It's working great so far...

Wednesday July 9, 2008 3:05 Helena

3:05

[Comment From LauraLaura: ]

i agree

Wednesday July 9, 2008 3:05 Laura

3:05

Andy Carvin:

fingers crossed

Wednesday July 9, 2008 3:05 Andy Carvin

3:05

[Comment From Cristina BarthelCristina Barthel: ]

Mine too!

Wednesday July 9, 2008 3:05 Cristina Barthel

3:05

[Comment From HelenaHelena: ]

And toes :D

Wednesday July 9, 2008 3:05 Helena

3:05

Andy Carvin:

LOL

Wednesday July 9, 2008 3:05 Andy Carvin

3:06

[Comment From GinaGina: ]

When does it start?

Wednesday July 9, 2008 3:06 Gina

3:06

Andy Carvin:

couple more minutes. I forgot the top of the hour is a little longer.

Wednesday July 9, 2008 3:06 Andy Carvin

3:06

[Comment From francescafrancesca: ]

it is 6 after. .hehehehe

Wednesday July 9, 2008 3:06 francesca

3:06

[Comment From Lori HaleLori Hale: ]

looking forward to this chat and live broadcast.

Wednesday July 9, 2008 3:06 Lori Hale

3:06

Andy Carvin:

there we go, I hear ted koppel!

Wednesday July 9, 2008 3:06 Andy Carvin

3:07

Andy Carvin:

And look - six minutes. Hah!

Wednesday July 9, 2008 3:07 Andy Carvin

3:07

[Comment From GinaGina: ]

I hear it now! Thanks

Wednesday July 9, 2008 3:07 Gina

3:07

[Comment From francescafrancesca: ]

swiss punctuality

Wednesday July 9, 2008 3:07 francesca

3:07

[Comment From HelenaHelena: ]

I hear it!!!

Wednesday July 9, 2008 3:07 Helena

3:07

[Comment From Cristina BarthelCristina Barthel: ]

Awesome!

Wednesday July 9, 2008 3:07 Cristina Barthel

3:07

[Comment From Cristina BarthelCristina Barthel: ]

YES!!!! woohooo!

Wednesday July 9, 2008 3:07 Cristina Barthel

3:07

[Comment From LauraLaura: ]

ted is speaking

Wednesday July 9, 2008 3:07 Laura

3:08

[Comment From francescafrancesca: ]

i think i may cry when I hear him

Wednesday July 9, 2008 3:08 francesca

3:08

Andy Carvin:

Meanwhile, feel free to pose questions to Leroy starting now; I'll pull them together and pass them along for the 4pm chat.

Wednesday July 9, 2008 3:08 Andy Carvin

3:08

[Comment From HelenaHelena: ]

Let's hear this wonderful "force of nature"!!!!

Wednesday July 9, 2008 3:08 Helena

3:08

[Comment From GuestGuest: ]

Yeah... I got it!

Wednesday July 9, 2008 3:08 Guest

3:09

[Comment From TRE'TRE': ]

WOW I NEVER KNEW ALL THIS WAS REAL TIME

Wednesday July 9, 2008 3:09 TRE'

3:09

Andy Carvin:

yep, Talk of the Nation is a Live broadcast.

Wednesday July 9, 2008 3:09 Andy Carvin

3:09

Andy Carvin:

Wednesdays we do it from the Newseum here in DC, so there's a live audience of maybe 100 or so people.

Wednesday July 9, 2008 3:09 Andy Carvin

3:10

[Comment From brian sandrobrian sandro: ]

wow they're lucky

Wednesday July 9, 2008 3:10 brian sandro

3:10

Andy Carvin:

If you're ever in DC, you can join us. Free tix at tickets@npr.org

Wednesday July 9, 2008 3:10 Andy Carvin

3:10

[Comment From TRE'TRE': ]

I LISTEN ALL THE TIME, BUT I NEVER THOUGHT TO PARTICIPATE.

Wednesday July 9, 2008 3:10 TRE'

3:10

[Comment From AmyJoAmyJo: ]

Where do you find your strength and overwhelming spirit?

Wednesday July 9, 2008 3:10 AmyJo

3:10

[Comment From GuestGuest: ]

Bless you, Leroy, I admire you greatly.

Wednesday July 9, 2008 3:10 Guest

3:10

[Comment From brian sandrobrian sandro: ]

cool, may take you up on that

Wednesday July 9, 2008 3:10 brian sandro

3:11

[Comment From GuestGuest: ]

Is Ted Koppel joking or is he seriously mad?

Wednesday July 9, 2008 3:11 Guest

3:11

[Comment From anonymousanonymous: ]

I know this doesn't further the current conversation, but Ted. Telling the audience to shut up doesn't become you.

Wednesday July 9, 2008 3:11 anonymous

3:11

eperal07:

The questions you post here, will be answered by Leroy at 4 PM. After Talk.

Wednesday July 9, 2008 3:11 eperal07

3:11

[Comment From TRE'TRE': ]

I THOUGHT IT WAS IRREVERENT

Wednesday July 9, 2008 3:11 TRE'

3:11

Andy Carvin:

Leroy and Ted are very old friends, so they have a way of interacting....

Wednesday July 9, 2008 3:11 Andy Carvin

3:11

[Comment From KimKim: ]

It's nice that Laurie is there too. I hope we will hear from her too.

Wednesday July 9, 2008 3:11 Kim

3:11

Andy Carvin:

I hope so as well.

Wednesday July 9, 2008 3:11 Andy Carvin

3:12

[Comment From Krupali Tejura MDKrupali Tejura MD: ]

It's so great to hear your voice again Leroy on TOTN... please give my regards to Ted and Elizabeth

Wednesday July 9, 2008 3:12 Krupali Tejura MD

3:12

[Comment From JanJan: ]

Chill, guys. Enjoy the broadcast.

Wednesday July 9, 2008 3:12 Jan

3:12

[Comment From JenniferJennifer: ]

Question for Leroy... prior to being diagnosed, had there been anyone in his life that was affected by cancer that may've helped form the strength and attitude towards his experience after being diagnosed?

Wednesday July 9, 2008 3:12 Jennifer

3:13

[Comment From AmyAmy: ]

I am a fairly new caregiver to my husband who has aggressive colon cancer. What do you need most, as a cancer patient, from your caregiver?

Wednesday July 9, 2008 3:13 Amy

3:13

Andy Carvin:

"You don't look as robust any more." Man, it's hard to hear Ted say that.

Wednesday July 9, 2008 3:13 Andy Carvin

3:13

[Comment From GuestGuest: ]

Will Living with Cancer ever be shown again? Is there somewhere we can purchase it?

Wednesday July 9, 2008 3:13 Guest

3:14

Andy Carvin:

Do you mean the Discovery Channel special?

Wednesday July 9, 2008 3:14 Andy Carvin

3:14

[Comment From Cristina BarthelCristina Barthel: ]

Amy to you I can say...SUPPORT, LOVE, AND TO BE THERE NO MATTER WHAT...KEEP THEM UP!

Wednesday July 9, 2008 3:14 Cristina Barthel

3:14

[Comment From GuestGuest: ]

yes

Wednesday July 9, 2008 3:14 Guest

3:14

Andy Carvin:

Might be for sale on the discovery.com website.

Wednesday July 9, 2008 3:14 Andy Carvin

3:14

[Comment From Cristina BarthelCristina Barthel: ]

i know your quest was for leroy but just a little more iput fro me

Wednesday July 9, 2008 3:14 Cristina Barthel

3:14

[Comment From L:illyL:illy: ]

The difference between a threat to your life in a war zone and one from cancer is that with cancer, it's your own body that is doing you in. The enemy is within you. In an external war zone, unless you get injured, your body is one thing you can generally count on.

Wednesday July 9, 2008 3:14 L:illy

3:15

eperal07:

Thanks for the questions so far! Keep 'em coming...

Wednesday July 9, 2008 3:15 eperal07

3:15

Andy Carvin:

By all means, everyone should feel free to take a crack at responding to each other's questions. This is a community discussion as well, not just a Q&A for Leroy, esp. since he may not be able to answer every question

Wednesday July 9, 2008 3:15 Andy Carvin

3:15

[Comment From MargoMargo: ]

Thank you, Andy.

Wednesday July 9, 2008 3:15 Margo

3:15

[Comment From Debra from New HampshireDebra from New Hampshire: ]

So good to hear your voice Leroy. Not knowing what's going to happen next is an extremly difficult way of life to embrace. Perhaps never embracing it and fighting it out is the way to go?? Strength to you.

Wednesday July 9, 2008 3:15 Debra from New Hampshire

3:15

Andy Carvin:

So glad to see you here, Debra!

Wednesday July 9, 2008 3:15 Andy Carvin

3:16

[Comment From CHRIS BIDDLECHRIS BIDDLE: ]

I AM A CANCER SURVIROR - I AM THE SISTER THAT WAS LEFT BEHIND TO MISS MY LOVED ONE. THIS SOUNDS VERY SELF CENTERED, BUT AS JANE WENT THRU BREAST CANCER (ON HER LIVER, BACK BONE) I WAS THERE AT EVERY TURN. AND AFTER THE PATIENT LEAVES US THERE IS NOTHING FOR US TO DO TO HELP HER ANYMORE AND YOUR LIFE HAS CHENGED IN ONE DAY - LIKE IS DID WITH THE CANCER COMING BACK IN A DAY. CANCER JUST STINKS! THANK YOU

Wednesday July 9, 2008 3:16 CHRIS BIDDLE

3:16

[Comment From Mary Jane MinottiMary Jane Minotti: ]

Two times cancer since June 2001 with the same breast cancer as Elizabeth Edwards. For now everything is going well. Wish my marriage

Wednesday July 9, 2008 3:16 Mary Jane Minotti

3:16

[Comment From Debra from New HampshireDebra from New Hampshire: ]

Thanks Andy, good to be seen.

Wednesday July 9, 2008 3:16 Debra from New Hampshire

3:16

[Comment From Laurie HirthLaurie Hirth: ]

Amy, talk, make memories, live each day to fullest. Help your husband to enjoy the time you both have.

Wednesday July 9, 2008 3:16 Laurie Hirth

3:16

[Comment From TRE'TRE': ]

IT'S AMAZING HOW MANY PEOPLE FEEL THAT SAME WAY

Wednesday July 9, 2008 3:16 TRE'

3:16

[Comment From LaniLani: ]

You can see a lot of the programming on the internet. Check there for programs.

Wednesday July 9, 2008 3:16 Lani

3:16

[Comment From KimKim: ]

I love the comment this guy is stating right now about being brave. I'm living with mets cancer too and sometimes it gets old.

Wednesday July 9, 2008 3:16 Kim

3:16

[Comment From Krupali Tejura MDKrupali Tejura MD: ]

Hi Andy: Thanks for your commentary, yes, hearing Ted say he doesn't look as robust is hard. I saw Leroy last year at the Discovery Cancer Special with Ted, Leroy and Elizabeth... he looked quite robust then.

Wednesday July 9, 2008 3:16 Krupali Tejura MD

3:17

Andy Carvin:

I remember when you were there, Krupali. Very happy to see you joining us. I haven't seen Leroy in a few months. He doesn't get to the NPR office as much as he used to.

Wednesday July 9, 2008 3:17 Andy Carvin

3:17

[Comment From j.k.j.k.: ]

A family member was recently diagnosed w/ stage 4 prostrate cancer and was wondering what or how is the best way to be supportive? (sounds silly I know, but one finds that at times you try to self-censor your speech a bit for the sake of others)

Wednesday July 9, 2008 3:17 j.k.

3:18

Andy Carvin:

JK: My dad's a prostate cancer survivor and my mom's a 14 yr survivor of stage 4 ovarian and stage 2 breast cancer. Short answer: help them, love them, and let them control the radio and remote control. :-)

Wednesday July 9, 2008 3:18 Andy Carvin

3:18

[Comment From Cristina BarthelCristina Barthel: ]

WOW!!! When my dad was sick THIS is JUST what he said!

Wednesday July 9, 2008 3:18 Cristina Barthel

3:18

[Comment From Krupali Tejura MDKrupali Tejura MD: ]

Leroy and his bloggers came at one crucial moment at the end of my residency training... and there is not a day that goes by now that i'm practicing on my own back home in California that I don't remember their sounding words....so I just wanted to say a resounding thank you for helping me try to become a better physician.

Wednesday July 9, 2008 3:18 Krupali Tejura MD

3:18

[Comment From Mary Jane MinottiMary Jane Minotti: ]

Two times breast cancer and going strong, but the marriage didn't respond as well to the fallout of terminal illness. Life would be better with a support spouse.

Wednesday July 9, 2008 3:18 Mary Jane Minotti

3:18

[Comment From PaulPaul: ]

My father passed away recently from bone marrow cancer. We learned of the cancer at Christmas and he survived for four months. I, like my siblings, felt terrified throughout the four months. Like deer in the headlights. Now I feel regret for not having done more. For example, he went downhill so quickly, we never got to say goodbye.

Wednesday July 9, 2008 3:18 Paul

3:18

[Comment From ChristineChristine: ]

Two years out from early stage breast cancer (now 40 years old). This is the anniversary month of finding the lump and getting the diagnosis; it's tough. Love the question about being brave and also the comment about not letting it define you. I'm still really struggling with not obsessing that every bodily sensation is something horrible. The emotions are as toxic as the disease itself!

Wednesday July 9, 2008 3:18 Christine

3:18

[Comment From Paul KassonPaul Kasson: ]

I was diagnosed in 2000 with synovial sarcoma, a really bad cancer, but it opened my eyes to the larger issue of cancer "victims." In fact, I did a Grand Rounds for a hospital on that topic. What are your thoughts or words of advice to those victims that are not the patients?

Wednesday July 9, 2008 3:18 Paul Kasson

3:18

[Comment From SusanSusan: ]

My mother passed away from cancer, which she fought every way possible, including experimental treatments which left her more ill. It seems like the best thing I could do for was to show interest in all her appointments, procedures, how she was feeling, ect. I still miss her.

Wednesday July 9, 2008 3:18 Susan

3:18

[Comment From JanJan: ]

This has got to be difficult for Ted also....since he and Leroy are such good friends.

Wednesday July 9, 2008 3:18 Jan

3:19

Andy Carvin:

Lots of good questions coming so far. Again, Leroy will probably only be able to answer a fraction of them, but I'll be sure he gets the full transcript - and all of you can offer your own advice, of course. :-)

Wednesday July 9, 2008 3:19 Andy Carvin

3:19

[Comment From ChristineChristine: ]

I just discovered you and your blog - I'm dealing witih kidney cancer and mets everywhere -since January. I just wanted to thank you for helping me find a place where I don't feel alone anymore

Wednesday July 9, 2008 3:19 Christine

3:19

Andy Carvin:

They're taking a brief break so people can stretch their legs. Back in a minute.

Wednesday July 9, 2008 3:19 Andy Carvin

3:19

[Comment From SusanSusan: ]

I just wanted Leroy to know how thankful I am for what he has done. It has helped me understand so much. Thank you, thank you. May peace find you however that may be. Namaste

Wednesday July 9, 2008 3:19 Susan

3:20

[Comment From Debra from New HampshireDebra from New Hampshire: ]

j.k. : just be present, don't go overboard trying to make everything perfect all the time. Sounds silly but really "being threre" is of great comfort a lot of the time

Wednesday July 9, 2008 3:20 Debra from New Hampshire

3:20

[Comment From Mary Jane MinottiMary Jane Minotti: ]

Good luck to all of us. We have an insightful way of looking at life.

Wednesday July 9, 2008 3:20 Mary Jane Minotti

3:20

[Comment From KimKim: ]

Question for Elizabeth: We just haven't heard much lately about her treatment. Would she briefly share what is happening with her treatment and how she is doing?

Wednesday July 9, 2008 3:20 Kim

3:20

Andy Carvin:

Kim: Eliz won't be taking q's in this live chat. Go to http://www.npr.org/blogofthenation and you can post q's for her there. Sorry it's so confusing.

Wednesday July 9, 2008 3:20 Andy Carvin

3:20

[Comment From Mary A. sullivanMary A. sullivan: ]

My mother died of ovarian cancer five years ago; virtually no progress has been made in screening for and treatment of this insidious illness.

Wednesday July 9, 2008 3:20 Mary A. sullivan

3:20

[Comment From Mary Jane MinottiMary Jane Minotti: ]

My heroine these days.

Wednesday July 9, 2008 3:20 Mary Jane Minotti

3:20

[Comment From GuestGuest: ]

I READ SOMEWHERE SHE WAS STAGE 4

Wednesday July 9, 2008 3:20 Guest

3:21

[Comment From RebeccaRebecca: ]

What about translating the wonderful awareness you've raised about cancer into crucial research dollars? My father is a 1.5yr pancreatic cancer survivor, and I've learned through this process that research is the only hope for a cure.

Wednesday July 9, 2008 3:21 Rebecca

3:21

Andy Carvin:

Rebecca, could you say more about what you mean?

Wednesday July 9, 2008 3:21 Andy Carvin

3:22

[Comment From NateNate: ]

This is heavy stuff

Wednesday July 9, 2008 3:22 Nate

3:22

[Comment From Bobbie JenkeBobbie Jenke: ]

Leroy-many of my friends are victims of Medical Malpractice--some of which involved Cancer. How can you imagine dealing with medical lies and cover-ups in addition to dealing with a terminal illness? What would your advice be to those who have been violated as well by the medical profession and must deal with the pain of those violations as they continue to cover up mistakes made? Thank you Leroy. I think you are wonderful.

Wednesday July 9, 2008 3:22 Bobbie Jenke

3:22

[Comment From KevinKevin: ]

Leroy--you are making a great contribution to others by being open about your experience. Thank you and God bless!

Wednesday July 9, 2008 3:22 Kevin

3:22

[Comment From Mary Jane MinottiMary Jane Minotti: ]

right on Elizabeth. Thanks for validating the fearful side.

Wednesday July 9, 2008 3:22 Mary Jane Minotti

3:23

[Comment From Ashley E-BAshley E-B: ]

When Ted mentioned that Leroy was a “robust man” it sparked a memory for me. At 15 I went to visit my 250 lb grandpa for the summer. When I arrived he could not stand up to greet me because he was down to under 100 lbs. It turned out that my family knew he had cancer, but did not want to upset me and this was to be my last visit with him. 16 years later I am still upset. I would have spent much more time with him had I been allowed to know of his illness. All the best to Leroy and his family.

Wednesday July 9, 2008 3:23 Ashley E-B

3:23

[Comment From RebeccaRebecca: ]

Pancreatic cancer is among the leading cancer killers, most people don't know they have it 'til it's too late. It's also one of the least funded cancers, and I can't help but believe there's a correlation there. Now that cancer is so often in the media, thanks to people like Leroy, Ted and Randy Pausch, now's the time to use this exposure to raise research $.

Wednesday July 9, 2008 3:23 Rebecca

3:23

[Comment From Mary Jane MinottiMary Jane Minotti: ]

Ashley, my grandad too.

Wednesday July 9, 2008 3:23 Mary Jane Minotti

3:24

[Comment From L:illyL:illy: ]

We could have a fund raiser... small dollars from so many would add up to a lot. It could go for research for one of the less well known cancers that doesn't have many treatment options.

Wednesday July 9, 2008 3:24 L:illy

3:24

Andy Carvin:

Not sure what the rules would be for NPR to be involved in that....

Wednesday July 9, 2008 3:24 Andy Carvin

3:24

Andy Carvin:

I think our ombudsman wrote a column on the subject recently

Wednesday July 9, 2008 3:24 Andy Carvin

3:24

[Comment From Krupali Tejura MDKrupali Tejura MD: ]

I completely agree with Rebecca, different cancers get more money for research than others.. it also depends on how many people it affects... there are statistically more breast cancer patients and prostate cancer patients in the world as compared to the others...so the funding can vary.

Wednesday July 9, 2008 3:24 Krupali Tejura MD

3:24

[Comment From L:illyL:illy: ]

Well...

Wednesday July 9, 2008 3:24 L:illy

3:25

Andy Carvin:

Lily, try not to hit the carriage return between words

Wednesday July 9, 2008 3:25 Andy Carvin

3:25

[Comment From JeffJeff: ]

Is there a more useful or better paradigm than "battling" or "fighting" cancer?

Wednesday July 9, 2008 3:25 Jeff

3:25

[Comment From ChristineChristine: ]

the question is how to start something like they did with Susan G. Komen that's so big now

Wednesday July 9, 2008 3:25 Christine

3:25

[Comment From Krupali Tejura MDKrupali Tejura MD: ]

Randy Pausch is a forefront for brining pancreatic cancer into the spotlight. He is also a great inspiration for cancer patients and people in general.

Wednesday July 9, 2008 3:25 Krupali Tejura MD

3:25

[Comment From Cristina BarthelCristina Barthel: ]

to jeff: smashing, crushing

Wednesday July 9, 2008 3:25 Cristina Barthel

3:25

[Comment From Mary Jane MinottiMary Jane Minotti: ]

Laughing in the face of cancer?

Wednesday July 9, 2008 3:25 Mary Jane Minotti

3:26

[Comment From Cristina BarthelCristina Barthel: ]

not sure if it helps but it's what i would to if i could

Wednesday July 9, 2008 3:26 Cristina Barthel

3:26

[Comment From TammyTammy: ]

Thank you to both Elizabeth and Leroy for sharing their story and lives. My husband is a 3 year 4 month NSCLC survivor who was stage IV when it was found. First, I have learned in helping him through this battle that there is always hope. Hope to beat or stabilize the disease and then for things to ease if the disease progresses. How have either or both of you fought the tendency to just go into a hole and think only about the fact that you have cancer and that it is progressing? What can the spouses do to help our loved ones who have descended into the depressing/negative side of having cancer?

Wednesday July 9, 2008 3:26 Tammy

3:26

[Comment From EllieEllie: ]

Elizabeth, and Leroy, You are right on..............cancer does control so much of your life..................but we ( those of us trying to surviv) still want TO BE IN CONTROL!!!!!!!

Wednesday July 9, 2008 3:26 Ellie

3:26

[Comment From Louise HawthorneLouise Hawthorne: ]

Do you feel that through all of the treatments and pain you have that the treatment and living these last two years have been worthwhile. I am a cancer survivor; my husband died of cancer and my mother died of cancer. My mother, when she woke from surgery said "I wish they had let me die." On the other hand, my husband wanted every possible treatment, but the quality of his life was terrible for the last 6 months. Is all of the suffering worth it?

Wednesday July 9, 2008 3:26 Louise Hawthorne

3:27

[Comment From brian sandrobrian sandro: ]

really makes you wonder how much any of us are ever in control

Wednesday July 9, 2008 3:27 brian sandro

3:27

[Comment From cindycindy: ]

I agree that cancer does end up defining you. After living with it for 10 years through 2 primary cancers and 1 mets. This is a gradual thing that you have to work through to come to terms with. But, just being here after this long has certainly helped. I'm 51 now and never thought I'd reach this age. I'm so happy to be here and, honestly, denial is still a part of the way I cope. Best Leroy and thank you for your encouragement and for this place!

Wednesday July 9, 2008 3:27 cindy

3:27

[Comment From Debra from New HampshireDebra from New Hampshire: ]

Thank you Elisabeth for acknowledging that cancer is ALWAYS there, just not as loud sometimes as others. Keeping it quiet is difficult sometimes.

Wednesday July 9, 2008 3:27 Debra from New Hampshire

3:27

[Comment From GuestGuest: ]

I am a breast cancer survivor, it has been almost 1 year since my radical mastectomy., I had stage III ductal cancer. I have had 3 aunts, and 2 first cousins with breast and ovarian cancer, all deceased. In my family on both maternal and paternal sides, virtually all of my deceased family has died from cancer within 18 months of diagnosis and treatment. This is very difficult for me and my family. I seem to be doing ok, but I often catch pitying glances from my sisters...wondering how long I will be with them. I try not to think about it, but every day while showering, I see the reminder. I am fine, I wish there is something that I could do for my sisters to give them some comfort.

Wednesday July 9, 2008 3:27 Guest

3:27

[Comment From Cristina BarthelCristina Barthel: ]

I completely agree with that...

Wednesday July 9, 2008 3:27 Cristina Barthel

3:27

[Comment From Cristina BarthelCristina Barthel: ]

what ted just said...

Wednesday July 9, 2008 3:27 Cristina Barthel

3:28

[Comment From francescafrancesca: ]

cancer can leave your body but never leaves your life

Wednesday July 9, 2008 3:28 francesca

3:29

[Comment From cindycindy: ]

You are so right in trying to keep control as long as possible and Elizabeth has said it very well just now

Wednesday July 9, 2008 3:29 cindy

3:29

[Comment From AndrewAndrew: ]

Andy, if you can, I'd love to know how many people are here reading and posting now.

Wednesday July 9, 2008 3:29 Andrew

3:29

[Comment From Diane RenzDiane Renz: ]

what is healing? Who are we? These are the questions I am left with. I completely enjoy to open discussion, when so often death and illness is kept in the shadows. None of us are getting out alive, so what do we do right now?

Wednesday July 9, 2008 3:29 Diane Renz

3:29

[Comment From Laurie HirthLaurie Hirth: ]

Leroy, So often as a caregiver, you worry about the patient and not yourself, you don't ask the questions you need answered. For myself, we did not want to believe it would take his life so we did not talk about the inevitable. Do you and Laurie talk about what is going to happen to her when this is all over, how she will handle being alone, how she will get the help she needs to cope with the loss of losing you?

Wednesday July 9, 2008 3:29 Laurie Hirth

3:30

Andy Carvin:

@andrew: good question. First time doing this so I'm not sure how that stats tool works.

Wednesday July 9, 2008 3:30 Andy Carvin

3:30

Andy Carvin:

@andrew: if we can figure it out, we'll be sure to post it on the blog later.

Wednesday July 9, 2008 3:30 Andy Carvin

3:30

[Comment From francescafrancesca: ]

to the others CS that are in remission.. do you think of a relapse ALL THE TIME????? I am a total mess... I was so strong and together but now I can cry so much... I have a 4 year old son and I want so much to be there for him...

Wednesday July 9, 2008 3:30 francesca

3:30

[Comment From ChristineChristine: ]

where does the sudden anger directed at inanimate objects come from or when a simple project goes wrong at the get go?

Wednesday July 9, 2008 3:30 Christine

3:31

Andy Carvin:

Looks like we've got 371 people watching, though the stats tool for the chatroom is kinda crude.

Wednesday July 9, 2008 3:31 Andy Carvin

3:31

[Comment From BobBob: ]

Why is this program not being aired in Houston, Texas? I missed the first part going to a computer.

Wednesday July 9, 2008 3:31 Bob

3:31

Andy Carvin:

The local station in Houston may air Talk of the Nation at a different time. Not sure, though.

Wednesday July 9, 2008 3:31 Andy Carvin

3:31

[Comment From paulapaula: ]

bob- tune in on kuhf.org for the live stream.

Wednesday July 9, 2008 3:31 paula

3:32

[Comment From francescafrancesca: ]

i have used these words from Ms. Edwards before to some family members.. ."who around this table will not die one day?"

Wednesday July 9, 2008 3:32 francesca

3:32

[Comment From EllieEllie: ]

To Francesasca - Some of us are ntoe in remission ( 5 = yrs of chemo) Have a good cry on a regular basis..it is good for you.......and good for your soul.

Wednesday July 9, 2008 3:32 Ellie

3:32

[Comment From SusanSusan: ]

I am enjoying everyone's comments, so insightful. I do think of relapses (for Hodgkins) as well as further problems with my CLL. I work hard not to think too far ahead. I intend to live a full, long an dhealthy life with my husband and son, but can't control that. All I can do is take things a day at a time. It's tough. I have a friend affected by cancer--her treatment continues--but she battles depression and a sense of hopelessness.

Wednesday July 9, 2008 3:32 Susan

3:32

[Comment From ScottScott: ]

is this show available for download after complted?

Wednesday July 9, 2008 3:32 Scott

3:32

[Comment From francescafrancesca: ]

to ellie: but I feel I am always crying .....

Wednesday July 9, 2008 3:32 francesca

3:34

Andy Carvin:

@scott: not sure if it'll be downloadable, but the show will be archived as a stream. We'll also make Leroy's 4pm chat available online later.

Wednesday July 9, 2008 3:34 Andy Carvin

3:34

[Comment From Claudia SimsponClaudia Simspon: ]

I'm a 4 time cancer survivor and I don't think about getting cancer anymore. I'm used to the physical problems I'm left with and actually am enjoying my life now. I just got off my last chemo 3 months ago.

Wednesday July 9, 2008 3:34 Claudia Simspon

3:34

[Comment From francescafrancesca: ]

should I be just jumping of joy that I bit stage 4 ?? at least for now???

Wednesday July 9, 2008 3:34 francesca

3:34

[Comment From JanJan: ]

Francesca, have you discussed taking anit-depressants with your doctor?

Wednesday July 9, 2008 3:34 Jan

3:34

[Comment From EllieEllie: ]

Francesca...............we shoud talk..............................for a while EVERYTHING is ovewhelming..................then you stop and think abotu what you really want to be doing...............besides fighting cancer..................................

Wednesday July 9, 2008 3:34 Ellie

3:34

[Comment From ScottScott: ]

@Scott: YEs, i use the podcasts via iTUnes all the time

Wednesday July 9, 2008 3:34 Scott

3:34

Andy Carvin:

@scott: TOTN podcast too?

Wednesday July 9, 2008 3:34 Andy Carvin

3:35

[Comment From Cristina BarthelCristina Barthel: ]

yes francesca yo should jump for joy....my pops was first diagnosed with the highest level of multiple myeloma and he only lived what they gave him AND man did he figt...so yes you should jump for joy!

Wednesday July 9, 2008 3:35 Cristina Barthel

3:35

[Comment From ScottScott: ]

Andy: i subscribe to Neil Conan's podcast, and get it on my PC every afternoon

Wednesday July 9, 2008 3:35 Scott

3:36

Andy Carvin:

@scott: then it should probably be a part of the next podcast, if it's the full 2-hr show you receive.

Wednesday July 9, 2008 3:36 Andy Carvin

3:36

[Comment From shelbyshelby: ]

As a five year cancer survivor, I consistently find that my friends fall into one of two categories: those who don't want to talk about it and those who don't want to talk about anything ELSE.

Wednesday July 9, 2008 3:36 shelby

3:36

[Comment From francescafrancesca: ]

i try to jump and please I appologise if I seem insensitive... sorry for your loss

Wednesday July 9, 2008 3:36 francesca

3:36

[Comment From Diane RDiane R: ]

interesting point Leroy about "positive attitude", always a double edge sword, our power of mind and its impact on the body, and that we can be blamed, or made to feel shame, if we get sick---did we think the wrong thoughts?

Wednesday July 9, 2008 3:36 Diane R

3:36

Debra from New Hampshire:

Francesca: cancer brings up such HuGE rage, it's scary sometimes. I do get that. Not to be cute but lighting fireworks actually feels very good. Major holiday not needed. Also, I recommend talk therapy. Check with your oncologist for specialized therapists and social workers.

Wednesday July 9, 2008 3:36 Debra from New Hampshire

3:36

[Comment From Claudia SimsponClaudia Simspon: ]

I can highly recommend doing acupunture during chemo and afterwards as well. It can help with mental as well as physical problems that come up.

Wednesday July 9, 2008 3:36 Claudia Simspon

3:37

[Comment From TinaTina: ]

I think you should be jumping for joy....because you have this moment....because it is all we ALL can count on....this moment. BTW my husband is a stage 4 melanoma patient...and he has been told, twice now, he has six months....he's on his third, "You've got six months to live..." and its not easy, doesn't get any easier....but for this moment, this day....he has, and we have. We have right now.

Wednesday July 9, 2008 3:37 Tina

3:37

[Comment From GuestGuest: ]

This is fascinating to me, especially since my mom was diagnosed with stage 4 ovarian cancer last month. She's currently undergoing chemotherapy. My question is how do you deal with friends and acquaintances who are understandably concerned, to tactfully tell them to back off. I have been giving updates by email but have received many requests for more information and people asking when my mom will be up for visitors. I have been telling them mom isn't ready but how can you get the message across for them to be more sensitive and wait for you to tell them instead of for them to keep badgering you for more information?

Wednesday July 9, 2008 3:37 Guest

3:37

[Comment From Cristina BarthelCristina Barthel: ]

francesca: i just wnated you to be happy about it....i understand :) cmpeltely! but take what you get and run with it and jump for joy and live it up all you can! :)

Wednesday July 9, 2008 3:37 Cristina Barthel

3:37

[Comment From Beth, Hospice Nurse RenoBeth, Hospice Nurse Reno: ]

I want people to know that hospice is not giving up or giving in. We want to assist people to adjust to their diagnosis, find aggressive pain relief and determine what their desires are. Should they find treatments, we encourage them to pursue if they desire and sign off hospice. Patients can come on and off hospice as many times as they lke if they qualify based on health. I spend much time with my patients helping them learn to do as much as possible to feel that they have some control over their lives. Most of all we listen. Hospice is not an end, but a beginning to discuss and deal with the disease and its consequences and help patients and family proceed with living.

Wednesday July 9, 2008 3:37 Beth, Hospice Nurse Reno

3:37

Debra from New Hampshire:

If I had a nickel for every person who "knows someone who died of cancer" and used it as a conversation opener I could fund Dana Farber myself.

Wednesday July 9, 2008 3:37 Debra from New Hampshire

3:38

Andy Carvin:

Just a reminder that when we get to 4pm, you'll have to reload your browser so it'll display the new audio stream.

Wednesday July 9, 2008 3:38 Andy Carvin

3:38

[Comment From JessJess: ]

My mother is slowly dying from peritoneal cancer (brought on by colon cancer). She had surgery for the colon cancer about 3 years ago, but it came back a year later in the peritoneum (lining around all your abdominal organs). It's been pretty brutal and her strength, though not surprising to anyone who knows her, is stunning. She's fought this much longer than the doctors expected her to. She reached a point in the early spring where they no longer had any ideas for treatment other than palliative pain management. As is so often the case with cancer, she's such an undeserving person to have to suffer and die this way. My dad has been her constant caregiver these past 18 months and I can only imagine how hard it is for him. There's so little good support (medical, emotional, community) for patients in rural locations such as theirs, but they work through it. At this point, I think we all wish, and simultaneously don't, that she could make it to November to meet the first grandchild scheduled to arrive then.

Wednesday July 9, 2008 3:38 Jess

3:38

[Comment From Holly PastHolly Past: ]

First, Mr. Koppel, I became a journalist after my father introduced me to your Nightly News as a young girl. Thank you.

Wednesday July 9, 2008 3:38 Holly Past

3:39

Andy Carvin:

They'll be back on air momentarily. Another stretch break.

Wednesday July 9, 2008 3:39 Andy Carvin

3:40

[Comment From shelbyshelby: ]

to Debra: SO true! Everyone has been "touched" by this heinous disease. My belief is that we all have rogue cancer cells in our bodies, and, if we don't take good care of ourselves physically and emotionally, our immune systems can't fight 'em off and they multiply. Lesson: Take care of yourself. Always.

Wednesday July 9, 2008 3:40 shelby

3:40

[Comment From SS: ]

I had Hodgkins years ago and I had two preschoolers. My husband buried himself in work. I learned to not give him full reports of my condition. We didn't trust eachother's strengths or weaknesses.

Wednesday July 9, 2008 3:40 S

3:40

Andy Carvin:

and we're back...

Wednesday July 9, 2008 3:40 Andy Carvin

3:40

[Comment From JessicaJessica: ]

I want to thank Leroy and NPR for this chat and the Cancer Blog. Part of what's so scary about the disease is the "unknown" AND no one wants to talk about it. Fear is inevitable, but it's much easier knowing you're not alone. Thank you, thank you, thank you!

Wednesday July 9, 2008 3:40 Jessica

3:40

[Comment From Cristina BarthelCristina Barthel: ]

andy you are doing great :)

Wednesday July 9, 2008 3:40 Cristina Barthel

3:40

Andy Carvin:

@christina: thanks. :-)

Wednesday July 9, 2008 3:40 Andy Carvin

3:40

[Comment From GuestGuest: ]

Living with cancer has been an incredible chance to learn more about myself. What are some of the things you all have learned, that might have surprised you?

Wednesday July 9, 2008 3:40 Guest

3:40

[Comment From L:illyL:illy: ]

I agree with Jessica.

Wednesday July 9, 2008 3:40 L:illy

3:41

Debra from New Hampshire:

To "guest" who's Mom has ovarian cancer: set up a "Caring Bridge". It's a site designed for patients to give updates (like a blog). Concerned family & friends can go there for updates and not call everyday. Also they can leave their own messages which is very nice to see, especailly on treatment days

Wednesday July 9, 2008 3:41 Debra from New Hampshire

3:41

[Comment From ShereeSheree: ]

As much as we want to believe we are not defined by cancer, following diagnoses in 2007 I know I have been changed forever and my cancer was caught very early.

Wednesday July 9, 2008 3:41 Sheree

3:41

[Comment From francescafrancesca: ]

Leroy: does sometimes the phrase " you are an inspiration" seems just to hard or to much pressure? I must say that people hae told me that and I am more often than not unconfortable with that?

Wednesday July 9, 2008 3:41 francesca

3:41

[Comment From shelbyshelby: ]

Hear, hear, Jessica! It's always comforting knowing you're not alone.

Wednesday July 9, 2008 3:41 shelby

3:41

[Comment From cindycindy: ]

Go to caringbridge.org to set up the site. It was a lifesaver for us too!

Wednesday July 9, 2008 3:41 cindy

3:42

[Comment From EmilyEmily: ]

Thank you Debra, that is great advice! We were planning on setting up a website but haven't yet. I'll get started on that tonight!

Wednesday July 9, 2008 3:42 Emily

3:42

[Comment From DianneDianne: ]

To Debra -- whenever somome tell's me about a friend, relative, etc. who died of cancer, my first inclination is to ask, "and what does this have to do with me?" But I stop myself, because I realize that they, too, are looking for an explanation, a reason, a justification, from anybody for the loss they have experienced. I don't have that answer now, anymore than their doctors had at the time.

Wednesday July 9, 2008 3:42 Dianne

3:42

[Comment From SS: ]

Carepages.com is free. you can post photos, patient updates, jokes, comments, etc. Everyone can get the same information at the same time.

Wednesday July 9, 2008 3:42 S

3:42

Debra from New Hampshire:

OK Leroy, I'M laughing! LOL!!!

Wednesday July 9, 2008 3:42 Debra from New Hampshire

3:43

[Comment From francescafrancesca: ]

that was funny

Wednesday July 9, 2008 3:43 francesca

3:43

[Comment From Cristina BarthelCristina Barthel: ]

To Guest: I tend to get mad at myself cause what i learned was that at times when my pops was around i was too hard on him for things that he was going through that i as a supporting daughter didn't understand and just wanted him to be different wanted him to act differently but now i know that at times to him that wasn't possible and i should have been more understanding. But among all this blog has made me a stronger person to understand more what i went through with my pops for 4 years from the moment the dr. told us he had multiple myeloma and it has helped me to stay somehow connected to people that i can hopefully give good words to and help with my support.

Wednesday July 9, 2008 3:43 Cristina Barthel

3:44

Andy Carvin:

Quick question: did any of you participate in the "My Cancer..." photo gallery we did a little while ago?

Wednesday July 9, 2008 3:44 Andy Carvin

3:44

[Comment From shelbyshelby: ]

Elizabeth, you're hilarious!

Wednesday July 9, 2008 3:44 shelby

3:44

[Comment From francescafrancesca: ]

i looked like the macys float of Humpty Dumpy (sp?)

Wednesday July 9, 2008 3:44 francesca

3:44

Debra from New Hampshire:

Dianne: You could respond, you've always wanted to be bald but are afraid of razors. LOL!

Wednesday July 9, 2008 3:44 Debra from New Hampshire

3:44

Andy Carvin:

LOL

Wednesday July 9, 2008 3:44 Andy Carvin

3:44

[Comment From gracegrace: ]

From cancer, I've learned that I still try to "do it alone." And that it takes a lot for me to trust almost anyone, especially my oncologist. I've been lucky or blessed to have found an oncologist who is able to respect my need to be in control, permitting me to really have a good deal of charge over my own care.

Wednesday July 9, 2008 3:44 grace

3:44

[Comment From Amy JenkinsAmy Jenkins: ]

I thnk laughter helps a lot. I have breast cancer as well as melanoma. One day a friend ask "I hope you are doing ok" I said " considering the alternative is dead, then yes, I am great." I shocked them. I have to laugh and smile and keep humor with my cancer. When I lost my hair my joke was "how does my hair look? Oh yea, I don't have any." Leroy, you are such an inspiration. You are not alone. Thank you so much for everything that you have done for us! Keep smiling and know that you have blessed all of our lives. THANK YOU!

Wednesday July 9, 2008 3:44 Amy Jenkins

3:44

[Comment From MargoMargo: ]

Debra from NH. . . that's funny!

Wednesday July 9, 2008 3:44 Margo

3:44

[Comment From John TynanJohn Tynan: ]

My mother was treated for cancer 3 times... as well as recovered from major heart surgery. It seemed like she would always escape major health issues. I am surprised at how shocked I was when her health turned and she quickly died. How do you communicate to the relatives of cancer survivors that their loved one doesn't have super human abilities and that they will pass on?

Wednesday July 9, 2008 3:44 John Tynan

3:45

Andy Carvin:

Hi John- so glad to have you here today.

Wednesday July 9, 2008 3:45 Andy Carvin

3:45

[Comment From LisaLisa: ]

Has anyone experienced a loss of friends or even family after their diagnosis? My husband's experience was that the experience seemed to "weed in" the important people in his life and weed out the apparently insignificant.

Wednesday July 9, 2008 3:45 Lisa

3:45

[Comment From GavinGavin: ]

Have any of you ever heard anything hilarious from friends or family re. your cancer that wasn't meant to be funny?

Wednesday July 9, 2008 3:45 Gavin

3:45

[Comment From Holly PastHolly Past: ]

First, Mr. Koppel, my father inspired me to become a journalist watching Nightline as a young girl. Thank you.Second, my father died last year from Myelomonocytic Leukemia. We discovered it is a very rare Leukemia that typically hits men in their late 60's and 70's. As a journalist, I did my research and learned the outcome was very grave. However, my step mother did not and my father - a normally informed man - deliberately chose not to know. He grew

Wednesday July 9, 2008 3:45 Holly Past

3:46

[Comment From JessJess: ]

A guest above asked what the cancer patient has learned ... as the daughter of a cancer patient, I can say I've learned a lot about my family during this time. We're very close and always have been, but there have been some surprising things (stories, memories, nuances of personalities) that have surfaced. I've learned a lot about myself and my capacity to love and care for and about someone. I've solidified my belief that my parents are a stunning example of what marriage can and should be. And I've learned just how important friends are and how important, difficult as it is, to keep up with my own life and needs. It's a constant struggle between wanting to spend all my time with my mom and knowing that I can't and shouldn't.

Wednesday July 9, 2008 3:46 Jess

3:46

[Comment From SusanSusan: ]

I agree with Francesca--don't feel bad about crying. It really helps! My friend is much like that too. Often, she "runs away" to a place where she can just let go, because she feels bad bringing her husband down (it distresses him to see her cry). Find a special place where you can let it all hang out!

Wednesday July 9, 2008 3:46 Susan

3:46

[Comment From cindycindy: ]

To lisa, I had that experience also. I've learned to make the choice to only be around those people who are a positive influence in my life. I didn't always have to make the choice, some of those who weren't positive weeded themselves out anyway....

Wednesday July 9, 2008 3:46 cindy

3:46

[Comment From Deb in MNDeb in MN: ]

One of my bes friends died of brain cancer. While being treated, she lost her hair and had a couple of craineotomies (spelling!!). For entertainment, she would go to the mall, sit outside of some very posh hair styling salons, and watch the startled faces of the passerbys. (The healthy folks would just assume that she had just come out from the salon) TOO funny. I sure miss you Steffie Weffie!!

Wednesday July 9, 2008 3:46 Deb in MN

3:47

[Comment From LillyLilly: ]

Yes. A lot of friends did disappear. So did my favorite uncle, although he has always been a very busy man. My sisters remained my best friends.

Wednesday July 9, 2008 3:47 Lilly

3:47

[Comment From DianneDianne: ]

Debra - my hair has thinned with the chemo for colon cancer, but I still have the majority of it. My husband and I joke that if you still have your hair, you don't get any sympathy.

Wednesday July 9, 2008 3:47 Dianne

3:48

[Comment From Cristina BarthelCristina Barthel: ]

to Gavin: My pops used to say whe the nurses came into the room or he had to go into for blood work....here come the vampires/the blood suckers...lol!

Wednesday July 9, 2008 3:48 Cristina Barthel

3:48

Debra from New Hampshire:

Lisa: Cancer separates the friends from the good-time-charlies (no offense to anyone named Charles). It's a painful part of the process, can be dissapointing. I have learned that people show you who they are, you just have to listen.

Wednesday July 9, 2008 3:48 Debra from New Hampshire

3:48

[Comment From ChristineChristine: ]

I just lost my Aunt 2 weeks ago while I'm fighting this and it's been hard even though she was 80 but she did show me how to die with grace

Wednesday July 9, 2008 3:48 Christine

3:48

[Comment From Lorettta LandeLorettta Lande: ]

I would like to mention an organization which may help any and all of you in dealing with cancer. Compassion & Choices.org. We are national and available both online and by telephone. Sometime just having someone to talk with helps those who may want a stranger's ear, instead of family. Not being a religious person, I want to wish all of you the best.

Wednesday July 9, 2008 3:48 Lorettta Lande

3:48

[Comment From cindycindy: ]

welll said, Debra.

Wednesday July 9, 2008 3:48 cindy

3:49

[Comment From GuestGuest: ]

As my hair was just beginning to fall out, I once stuck a piece of gum in it an asked a particulary wise-cracking friend to remove it. He was quite surprised when a whole handful of hair came out with it. A little sick, maybe. Hilarious, definitely!

Wednesday July 9, 2008 3:49 Guest

3:49

[Comment From shelbyshelby: ]

We breast cancer ladies on Adriamycin are unmistakable: the baldness is COMPLETE. I can always tell, and I'll often approach these total strangers, point to my "new" hair and tell them that it WILL grow back.

Wednesday July 9, 2008 3:49 shelby

3:49

[Comment From LillyLilly: ]

To some of the people who once were around, they were all getting married and having babies. I tink they just didn't know how to handle someone who was fighting for her life.

Wednesday July 9, 2008 3:49 Lilly

3:49

[Comment From JessJess: ]

One more thing I've learned, or perhaps it's a regret: I wish I had started a journal at diagnosis. I've never been a journaler and I wish I had done it. The past year and a half have been so long in many ways that they've started to absorb my memory. I wish that I had journaled all the significant steps along the way, and with each one of those also written a story or memory of how my mom always was. I know the old memories will come back and take over my memory in the long-run, but I wish that I could refer to some at the times when I get sad.

Wednesday July 9, 2008 3:49 Jess

3:49

[Comment From RossRoss: ]

just a comment... i'm listening to the broadcast and it's hitting me how similar all these topics are to when i found out a loved one had hiv. the impact on their family and loved ones, the helplessness... the treatments...

Wednesday July 9, 2008 3:49 Ross

3:49

Debra from New Hampshire:

Dianne: my hair got very thin too, I used to wind it around my head and tell my kids it was my "Donald Trump Doo", hair by ADVB

Wednesday July 9, 2008 3:49 Debra from New Hampshire

3:49

[Comment From LindaLinda: ]

When first diagnosed in 1993 with advanced ovarian cancer, my daughter told me not to pay attention to the grim statistics as there are too many variables! My dr. told the family that I had 6-12 mo. to live....and it is now almost 15 yrs. later. It has been a bumpy road, with 4 surgeries, radiation and chemo...and I am feeling blessed to be here! Re: the medical marijuana comment...YES! it is a very helpful medication which cuts back the nausea, increases appetite and should be available for cancer patients.

Wednesday July 9, 2008 3:49 Linda

3:49

[Comment From francescafrancesca: ]

any NHL DLBC stg 4 out there?

Wednesday July 9, 2008 3:49 francesca

3:49

[Comment From cathicathi: ]

I've been rooted to Leroy's blog for 1 1/2 years. I don't have cancer. I have life - with all the dis-eases that entails. Leroy and the blog has been invaluable in wisdom, compassion, and pervasive Spirit

Wednesday July 9, 2008 3:49 cathi

3:49

[Comment From SS: ]

Sometimes even the best friends can't take it, and drop away. And yet new people surge forward and become great friends and helpers.

Wednesday July 9, 2008 3:49 S

3:50

[Comment From LillyLilly: ]

I had a journal. Then one day I lost it at Panera. I can't imagine what the person who found it might have thought.

Wednesday July 9, 2008 3:50 Lilly

3:50

Debra from New Hampshire:

"Old Geezer": just to clarify, we're all on horse back: HANG ON!!!!

Wednesday July 9, 2008 3:50 Debra from New Hampshire

3:51

[Comment From brian sandrobrian sandro: ]

ted koppel is a class act

Wednesday July 9, 2008 3:51 brian sandro

3:51

[Comment From EllieEllie: ]

My darling husband writes a monthly "update" to our friends and family, and it is his journal. He tells of the status of the cancer, the drugs, or family and our life..............it has been wonderful. It is never too late to start writing.....................

Wednesday July 9, 2008 3:51 Ellie

3:51

[Comment From Laurie HirthLaurie Hirth: ]

That was good Debra! lol

Wednesday July 9, 2008 3:51 Laurie Hirth

3:51

[Comment From gracegrace: ]

I'm wondering how others in remission are faring. I find that after every scan, I'm relieved but also anxious and perhaps even ambivalent, wondering when the other shoe will drop. Sometimes I think it would be easier to just have the recurrence. The waiting, and uncertainty are very challenging for me.

Wednesday July 9, 2008 3:51 grace

3:51

Debra from New Hampshire:

Linda: stories like yours are inspirational. So very glad you are here.

Wednesday July 9, 2008 3:51 Debra from New Hampshire

3:52

[Comment From Cristina BarthelCristina Barthel: ]

ellie: what a gare thing to do..that hs to be so hard, but such agood idea of his

Wednesday July 9, 2008 3:52 Cristina Barthel

3:52

eperal07:

A reminder: At 4 PM, you'll need to refresh your browsers to get the stream Leroy will be on.

Wednesday July 9, 2008 3:52 eperal07

3:52

[Comment From francescafrancesca: ]

grace: I totalllllllllly "hear you"

Wednesday July 9, 2008 3:52 francesca

3:52

[Comment From Amy JenkinsAmy Jenkins: ]

Yes, I too have lost long time friends. I think it is just to much for them. I did learn that each of my friends handle it differently. That is OK. I don't expect everyone to deal with my illness the same way.

Wednesday July 9, 2008 3:52 Amy Jenkins

3:53

[Comment From LindaLinda: ]

Thank u so much Debra...it is the good stories that keep us all going. I do patient advocacy work to try to give back.

Wednesday July 9, 2008 3:53 Linda

3:53

[Comment From kimmy in richmondkimmy in richmond: ]

grace. I'm remission from stage III colon cancer. i relieve the a lot of anxiety with each scope and scan.

Wednesday July 9, 2008 3:53 kimmy in richmond

3:53

[Comment From Loretta LandeLoretta Lande: ]

I would like to thank Ted Koppel for being on the air in any shape or form. I miss his wisdom and insightfulness. Both Mrs. Edwards and Mr. Sievers "Thank you".

Wednesday July 9, 2008 3:53 Loretta Lande

3:53

[Comment From DianneDianne: ]

Lisa - not only has my cancer separated the close friends from the acquaintances, but it has given me a major blessing. With their support, my family and friends have shown me that they love me as much as I love them.

Wednesday July 9, 2008 3:53 Dianne

3:53

[Comment From TammyTammy: ]

Grace: My husband is much the same. His cancer is stable, but each time for a scan brings a new bout of "well at least I won't die in the next 3 months!"

Wednesday July 9, 2008 3:53 Tammy

3:53

[Comment From LisaLisa: ]

I'm a nursing student and am wondering what I can do to help cancer patients.

Wednesday July 9, 2008 3:53 Lisa

3:53

[Comment From shelbyshelby: ]

Oh, Grace, YES. Anxious, angry, and deflated. Five years on, my friends and family just want to hear the "all clear" news, not the rollercoaster ride getting there.

Wednesday July 9, 2008 3:53 shelby

3:53

[Comment From kimmy in richmondkimmy in richmond: ]

I meant I relive the teh anxiety :)

Wednesday July 9, 2008 3:53 kimmy in richmond

3:53

[Comment From RuthRuth: ]

In defense of care givers, it would be nice if the cancer survivors would let us help. We can see how difficult ordinary activities can be for you, and we would be more than happy to make a trip to the fridge to get a fresh can of soda or dish of ice cream. Yes, you can do it, but we would appreciate the opportunity to make it easier for you.

Wednesday July 9, 2008 3:53 Ruth

3:53

[Comment From LillyLilly: ]

Grace, I am the same way about my remission.

Wednesday July 9, 2008 3:53 Lilly

3:53

[Comment From francescafrancesca: ]

some people are just paralyzed by news of cancer and cant handle

Wednesday July 9, 2008 3:53 francesca

3:54

[Comment From Sheree from WisconsinSheree from Wisconsin: ]

any medication usage should be up to the individual who is experiencing cancer. I get a kick out of it when someone comments on the hazzards of meds. hmmm cancer meds vs hazzards.

Wednesday July 9, 2008 3:54 Sheree from Wisconsin

3:54

[Comment From Amy JenkinsAmy Jenkins: ]

There is only one direction. That is forward. Each of us have to forward!!!

Wednesday July 9, 2008 3:54 Amy Jenkins

3:54

[Comment From AmyJoAmyJo: ]

Lisa - be sincere with your care -

Wednesday July 9, 2008 3:54 AmyJo

3:54

[Comment From ChristineChristine: ]

with regard to friends, I have found out there are more people who care for me than I ever knew - stage 4 has been a blessing in that sense

Wednesday July 9, 2008 3:54 Christine

3:54

[Comment From LindaLinda: ]

Yes, Grace it is a very difficult time waiting for results to come back.....even tho it is 14 yrs since my diagnosis, I still am anxious. It seems like the Sword of Damocles forever hangs.

Wednesday July 9, 2008 3:54 Linda

3:54

[Comment From Allecia from Hershey PA.Allecia from Hershey PA.: ]

I am blessed,I do not have Cancer,but to those of you who are living with these disease I want you to know thousands of us who are cancer free are learning how to support,encorage,love,and listen to those of you whom we do love.Much Love and respect to all of you!

Wednesday July 9, 2008 3:54 Allecia from Hershey PA.

3:54

[Comment From Cristina BarthelCristina Barthel: ]

Yes, Leroy, that is what my pops used to hear all the time..you are young, keep fighting, try this and then let's see what comes up...we heard it month in and month out!

Wednesday July 9, 2008 3:54 Cristina Barthel

3:54

[Comment From DakotaDakota: ]

To any clinicians or oncologists out there: where are the forefronts of cancer research right now? What are the brightests spots?

Wednesday July 9, 2008 3:54 Dakota

3:54

[Comment From Cristina BarthelCristina Barthel: ]

that was the most difficult part of things

Wednesday July 9, 2008 3:54 Cristina Barthel

3:55

[Comment From shelbyshelby: ]

Lisa: find out what makes the individuals feel powerful in their fight. Could be knowledge, could be spirituality. Play into that.

Wednesday July 9, 2008 3:55 shelby

3:55

[Comment From robin messing bogdanoffrobin messing bogdanoff: ]

For Leroy and Laurie -- What is the most helpful or encouraging thing a friend or acquaintance or family member has done for you during your stay in Cancer World? And what was the least helpful thing?

Wednesday July 9, 2008 3:55 robin messing bogdanoff

3:56

[Comment From EllenEllen: ]

I'm an oncology nurse & wanted to comment on the gentleman that called w/ prostate cancer. He may be interpreting the valid choice of "watchful waiting" with "do nothing - you're too old"

Wednesday July 9, 2008 3:56 Ellen

3:56

Debra from New Hampshire:

Thank you Leroy, we ARE all in this together. Not a club we wanted to join but a nice bunch of people.

Wednesday July 9, 2008 3:56 Debra from New Hampshire

3:56

[Comment From LindaLinda: ]

If anyone wants/needs coping suggestions, or support....please feel free to contact me at hh5909@aol.com

Wednesday July 9, 2008 3:56 Linda

3:56

[Comment From PamPam: ]

Leroy at any point in your disease have you looked into alternative medicine? I am a cancer patient and am trying to do everything I can do to fight my battle holisticly. I often look at conventional med. as a way of putting off the inevitable at the expence of being very sick and attacking every part of your body. Thanl you You are a great man Thank you

Wednesday July 9, 2008 3:56 Pam

3:56

[Comment From LeeAnnLeeAnn: ]

I am a three year survivor of brain cancer. AlsoI had radiation to follow the surgery. I am a college student in my junior year. Every semester I must decide whether or not to disclose that I had brain cancer and have significant cognitive issues that do create complications in my academic career. I struggle with telling my professors that I have these cognitive issues because in my freshmen year in college, and I was very open about my cancer with my professors. I felt that my teachers did in fact treat me differently from other classmates. For example, one of my proessors' gave me an A on a paper that I knew only derseved a c letter grade due to grammatical problems. For the last two years I have not divuldge that I am a cancer survivor, for fear of being treating differently or getting certain breaks on academic assignments. I do not want to be viewed as someone who needs a hand out or has had it so hard. It is very frustrating to feel this anixety about whether or not to be honest with my teachers. How do other people deal telling teachers that he or she has cancer?

Wednesday July 9, 2008 3:56 LeeAnn

3:56

Cristina Barthel:

Leroy THANK YOU!

Wednesday July 9, 2008 3:56 Cristina Barthel

3:57

[Comment From AmyJoAmyJo: ]

Dakota - we need more government funding - hard for the smaller practices that have such talented Oncologists/hemotologists to fund the research

Wednesday July 9, 2008 3:57 AmyJo

3:57

Cristina Barthel:

Elizabeth! Tahnk you too!

Wednesday July 9, 2008 3:57 Cristina Barthel

3:57

Cristina Barthel:

Ted Thank you!

Wednesday July 9, 2008 3:57 Cristina Barthel

3:57

Cristina Barthel:

andy thanks for helping us hear this online

Wednesday July 9, 2008 3:57 Cristina Barthel

3:57

Andy Carvin:

Ted's talking about us!

Wednesday July 9, 2008 3:57 Andy Carvin

3:57

eperal07:

remember -- refresh your your browsers when this is over at 4 PM

Wednesday July 9, 2008 3:57 eperal07

3:57

[Comment From BruceBruce: ]

Gotta run for a bit, I'll be back--hi Krupali, your absence lately has been noticed. Hope things are working out well.

Wednesday July 9, 2008 3:57 Bruce

3:57

[Comment From Louise HawthorneLouise Hawthorne: ]

I think my husband's doctors gave him false hope. The quality of his life after 3 surgeries, chemotherapy and radiation was horrible. I realize that there could be breakthroughs, but do you realize how many people have died before those breakthroughs and suffered terrible pain and debilitation for th last months of their shorts lives.

Wednesday July 9, 2008 3:57 Louise Hawthorne

3:57

[Comment From BernadineBernadine: ]

You guys are great, thank you!

Wednesday July 9, 2008 3:57 Bernadine

3:57

[Comment From francescafrancesca: ]

THANK YOU to all involved with this great program

Wednesday July 9, 2008 3:57 francesca

3:57

[Comment From MargoMargo: ]

Yes, Leroy and Elizabeth thank you

Wednesday July 9, 2008 3:57 Margo

3:57

[Comment From GinaGina: ]

Hello everyone. My mom - my best friend - died in April 2004 after a six-year battle with breast cancer. Through it all, she was amazingly brave, and always carried on as if she would be around forever. Even when the end was very near, my mom looked at me, and said, “I fully expect to come out of this” (ironically, while sitting in a wheelchair with oxygen tubes attached because the cancer had now made breathing difficult). I often wished that she had taken me aside and said the things you would say to your loved ones when you know you are going to die. Things like, "I will always love you, and I know that my cancer has changed your world forever, maybe made you more afraid of life." I often wonder now if her upbeat attitude made things easier on her family, or more difficult because we didn’t talk about certain things. I totally agree with Leroy's comment about family members feeling helpless in this experience. Thank you everyone for sharing your wisdom and comments.

Wednesday July 9, 2008 3:57 Gina

3:57

[Comment From SS: ]

Thank you Andy. Thank you all.

Wednesday July 9, 2008 3:57 S

3:58

Andy Carvin:

Don't leave just yet...

Wednesday July 9, 2008 3:58 Andy Carvin

3:58

Andy Carvin:

Leroy will join the chat in a few minutes. Reload your web browser then click the triangular play button

Wednesday July 9, 2008 3:58 Andy Carvin

3:58

[Comment From GuestGuest: ]

I wonder if you could suggest a good cookbook/source of recipes that are good for cancer patients? A friend has just been diagnosed and would appreciate meals, though the list of dietary guidelines seems daunting...thank you, and all the best.

Wednesday July 9, 2008 3:58 Guest

3:58

[Comment From Ravi JoshiRavi Joshi: ]

Leroy, Elizabeth, Ted - Thanks you.

Wednesday July 9, 2008 3:58 Ravi Joshi

3:58

[Comment From Linda LeeLinda Lee: ]

You were wonderful, Leroy! (I listened at work.)

Wednesday July 9, 2008 3:58 Linda Lee

3:58

[Comment From francescafrancesca: ]

can I refresh now or must be at 4 pm

Wednesday July 9, 2008 3:58 francesca

3:58

[Comment From Diane RDiane R: ]

Leroy, in what way does spirituality play in your life now, if at all?

Wednesday July 9, 2008 3:58 Diane R

3:58

[Comment From RobRob: ]

I'm a prostate cancer survivor, but I have deep depression

Wednesday July 9, 2008 3:58 Rob

3:59

Andy Carvin:

@francesca: refresh!

Wednesday July 9, 2008 3:59 Andy Carvin

3:59

[Comment From KimKim: ]

That was awesome. I love to listen to LeRoy

Wednesday July 9, 2008 3:59 Kim

3:59

[Comment From SS: ]

How do I refresh the page?

Wednesday July 9, 2008 3:59 S

3:59

eperal07:

everyone can refresh now!

Wednesday July 9, 2008 3:59 eperal07

3:59

Andy Carvin:

Hit your browser's reload button.

Wednesday July 9, 2008 3:59 Andy Carvin

3:59

[Comment From BruceBruce: ]

I'm at work (heh heh) and won't be able to hear the show until tonight, but I'll be back on here in a few.

Wednesday July 9, 2008 3:59 Bruce

3:59

[Comment From LillyLilly: ]

Lisa, as someone said earlier, just come around and spend some time. It doesn't have to be all about the cancer. Leroy, this blog has done so much to eliminate the isolation I had felt since my diagnosis. Thank you. And to you and Ted, I started watching Nightline when I was pretty young and worried about American hostages in Iran. I miss your touch on Nightline now.

Wednesday July 9, 2008 3:59 Lilly

3:59

[Comment From Diane RDiane R: ]

Leroy, how do you work with you anxiety and fear, what helps you?

Wednesday July 9, 2008 3:59 Diane R

4:00

[Comment From francescafrancesca: ]

does it all look the same?

Wednesday July 9, 2008 4:00 francesca

4:00

[Comment From JessJess: ]

To Ellie: That's a wonderful thing for your husband to do. We couldn't find CaringBridge when this all came up, so my dad and I set up a Blogger account and restricted access to it. That's worked well and has kept literally hundreds of people all around the world updated on my mom's condition. She's written at times and having that archive -- of her words, friends comments, and the many posts my dad and I have written -- will be priceless. I still wish I'd kept a journal for myself, privately, but instead of wishing I should just start one now. :)

Wednesday July 9, 2008 4:00 Jess

4:00

[Comment From LindaLinda: ]

Rob....there are new meds available for depression...see ur dr. asap! It makes a huge difference in your life!

Wednesday July 9, 2008 4:00 Linda

4:00

[Comment From AlaskadebAlaskadeb: ]

Is there a way to hear the whole NPR show? I missed the beginning.

Wednesday July 9, 2008 4:00 Alaskadeb

4:00

[Comment From EllenEllen: ]

Few people choose to participate in research clinical trials. Research is how new things are found out. Molecular & genetic research is the frontier of cancer research.

Wednesday July 9, 2008 4:00 Ellen

4:00

[Comment From JeanneJeanne: ]

Cookbook = One Bite at a Time

Wednesday July 9, 2008 4:00 Jeanne

4:00

[Comment From PattePatte: ]

I quite appreciated both Leroy and Elizabeth's views on being "role models." What is it that makes us instantly inspirational to people once we are diagnosed with cancer? I think that given the same diagnosis, most of them would find themselves with the same strength, determination and resolve that they so admire in us.

Wednesday July 9, 2008 4:00 Patte

4:00

Andy Carvin:

Audio should start in a few mins.

Wednesday July 9, 2008 4:00 Andy Carvin

4:00

[Comment From CarolCarol: ]

Leroy, you are an inspiration to all of us. Listening to you and reading your blog helps tamp down my fear. Thank you.

Wednesday July 9, 2008 4:00 Carol

4:00

eperal07:

Yes, except there should be a little blue rectangle with a triangular play button.

Wednesday July 9, 2008 4:00 eperal07

4:00

[Comment From Laurie HirthLaurie Hirth: ]

That was awesome, thanks NPR!

Wednesday July 9, 2008 4:00 Laurie Hirth

4:00

[Comment From AnonymousAnonymous: ]

This may seem insensitive, egocentric, irrelevant and odd, and I apologize if it is any of those. I hope you will bear with me nonetheless.

Wednesday July 9, 2008 4:00 Anonymous

4:00

[Comment From RobRob: ]

I'm a happily married, mid fifties white man, and although I am happy my surgery went well, my whole self esteem has taken an unexpected hit

Wednesday July 9, 2008 4:00 Rob

4:00

[Comment From francescafrancesca: ]

agree 100% with Patte

Wednesday July 9, 2008 4:00 francesca

4:01

Cristina Barthel:

andy sorry to be such a pain, but once you click above it should just start like the last broadcast right?

Wednesday July 9, 2008 4:01 Cristina Barthel

4:01

[Comment From patpat: ]

will this segment be repeated on radio?

Wednesday July 9, 2008 4:01 pat

4:01

eperal07:

We are waiting on Leroy.

Wednesday July 9, 2008 4:01 eperal07

4:01

Andy Carvin:

The Ted Koppel segment is on air today. The chat we're about to have with Leroy is an online exclusive.

Wednesday July 9, 2008 4:01 Andy Carvin

4:01

[Comment From AnonymousAnonymous: ]

This may seem insensitive, egocentric, irrelevant and odd, and I apologize if it is any of those. I hope you will bear with me nonetheless. 4:00 [Comment From Rob]

Wednesday July 9, 2008 4:01 Anonymous

4:01

[Comment From JayJay: ]

Thank you Leroy.

Wednesday July 9, 2008 4:01 Jay

4:01

[Comment From JustinJustin: ]

Thank you to NPR for that broadcast, it was so great

Wednesday July 9, 2008 4:01 Justin

4:02

Andy Carvin:

We just hit 750 chat participants.

Wednesday July 9, 2008 4:02 Andy Carvin

4:02

Andy Carvin:

I hear Eyder's voice - good sign.

Wednesday July 9, 2008 4:02 Andy Carvin

4:02

[Comment From francescafrancesca: ]

how will this work?

Wednesday July 9, 2008 4:02 francesca

4:02

[Comment From Ruth ChermokRuth Chermok: ]

Leroy - thank you for this program - and what a treat to hear Elizabeth Edwards!! You are both such an inspiration, and as you say, Leroy, we are all in this together!!! Thank God!!!

Wednesday July 9, 2008 4:02 Ruth Chermok

4:02

[Comment From hilaryhilary: ]

are we hearing anything yet?

Wednesday July 9, 2008 4:02 hilary

4:02

[Comment From BritBrit: ]

I hear it.

Wednesday July 9, 2008 4:02 Brit

4:02

[Comment From BarbaraBarbara: ]

I applaud any and every one who shines a light on the issue of cancer survivorship (Cancer veterans). This population is growing so much faster than medicine as we know it can deal with it effectively. (- caregiver for a 10 year Stage 4 head and neck squamous survivor aka, a miracle.)

Wednesday July 9, 2008 4:02 Barbara

4:02

[Comment From francescafrancesca: ]

UNITY IS STRENGHT

Wednesday July 9, 2008 4:02 francesca

4:02

[Comment From JeffJeff: ]

When is it appropriate to discuss a suicide for cancer patients? Given that there are methods available to take one's own life without causing physical trauma or destruction of property, and without needing the involvment of a physician, do you find more and more people talking about it? Certainly, clinical depression has to be weighed against the desire for personal deliverance but isn't it a person's right to stop the internal destruction caused by cancer and the chemo and radiation treatments and to do so while still able to take that action?

Wednesday July 9, 2008 4:02 Jeff

4:02

[Comment From ViVi: ]

Yes, very moving. Shout out to all who called and spoke...Stephanie...beautiful...

Wednesday July 9, 2008 4:02 Vi

4:02

[Comment From kimmy in richmondkimmy in richmond: ]

7 years in remission and I never felt more connected with people who understand my experience. Thank you Leroy, Elizabeth and Ted.

Wednesday July 9, 2008 4:02 kimmy in richmond

4:03

[Comment From MargoMargo: ]

I hear you. . . this is wonderful

Wednesday July 9, 2008 4:03 Margo

4:03

[Comment From MarilynMarilyn: ]

Leroy . . . you took the words right out of my mouth. Thank you.

Wednesday July 9, 2008 4:03 Marilyn

4:03

[Comment From ChristineChristine: ]

is there a way to print this? I can't keep up with the conversation since the met in the brain showed up I've lost my ability to read fast?

Wednesday July 9, 2008 4:03 Christine

4:03

[Comment From BrendaBrenda: ]

I'm still hearing the regular radio?

Wednesday July 9, 2008 4:03 Brenda

4:03

Andy Carvin:

@christine: I'll post the transcript to the blog later.

Wednesday July 9, 2008 4:03 Andy Carvin

4:03

[Comment From Louise HawthorneLouise Hawthorne: ]

[Comment From Louise Hawthorne] Leroy, are all of the tough treatments really worth it? I think my husband's doctors gave him false hope. The quality of his life after 3 surgeries, chemotherapy and radiation was horrible. I realize that there could be breakthroughs, but do you realize how many people have died before those breakthroughs and suffered terrible pain and debilitation for th last months of their shorts lives.

Wednesday July 9, 2008 4:03 Louise Hawthorne

4:03

[Comment From Tina from Alton, ILTina from Alton, IL: ]

I missed most of the programme because I am at work - will it be repeated or is it possible to download it? I would love to hear Leroy.

Wednesday July 9, 2008 4:03 Tina from Alton, IL

4:03

[Comment From gracegrace: ]

will we be able to review the comments later. I also can't keep up --chemo brain?

Wednesday July 9, 2008 4:03 grace

4:03

[Comment From Douglas L. SaundersDouglas L. Saunders: ]

About 15 years ago a dear friend Jill Grunewald died of pancreatic cancer. While she was wasting away, she told me she had just "plummeted through her ideal weight" - a line I still find funny, and perhaps the only funny line I have ever heard about dying of cancer

Wednesday July 9, 2008 4:03 Douglas L. Saunders

4:03

[Comment From BritBrit: ]

I missed the show. I hope there is a podcast we can hear.

Wednesday July 9, 2008 4:03 Brit

4:03

[Comment From ChristineChristine: ]

Andy = thanks

Wednesday July 9, 2008 4:03 Christine

4:03

[Comment From SandySandy: ]

Thank you Leroy, Ted and Elizabeth for the discussion.

Wednesday July 9, 2008 4:03 Sandy

4:03

Cristina Barthel:

oh great, there it is!

Wednesday July 9, 2008 4:03 Cristina Barthel

4:04

Andy Carvin:

audio for the Talk of the Nation show will be online here in a few hours: http://www.npr.org/blogofthenation

Wednesday July 9, 2008 4:04 Andy Carvin

4:04

[Comment From ViVi: ]

My cancer joke; My husband suggested I get a Marge Simpson wig when I was bald! I laughed myself silly that day.

Wednesday July 9, 2008 4:04 Vi

4:04

[Comment From francescafrancesca: ]

andy: THANK YOU

Wednesday July 9, 2008 4:04 francesca

4:04

[Comment From hilaryhilary: ]

good sign,,,i heard your voice

Wednesday July 9, 2008 4:04 hilary

4:04

[Comment From Colorado CupcakeColorado Cupcake: ]

Thank you--so nice to hear Leroy and Elizabeth. Both class acts!

Wednesday July 9, 2008 4:04 Colorado Cupcake

4:04

[Comment From DeniseDenise: ]

oh i love that doug!

Wednesday July 9, 2008 4:04 Denise

4:04

[Comment From KimKim: ]

I connect to the blog because Leroy is able to put into words the feelings that I have about cancer that I cannot always express myself. It was good to hear his voice. He needs to post a new picture of himself on the blog. Thanks Leroy and Elizabeth.

Wednesday July 9, 2008 4:04 Kim

4:04

[Comment From GuestGuest: ]

is it on yet?

Wednesday July 9, 2008 4:04 Guest

4:04

[Comment From Allecia from HersheyAllecia from Hershey: ]

BAM ! You just kicked up the "My Cancer" Blog a notch with the broadcast and this Chat..Thank You Leroy :>)

Wednesday July 9, 2008 4:04 Allecia from Hershey

4:05

Andy Carvin:

Reload your browser and click the triangular play button to hear the new chat

Wednesday July 9, 2008 4:05 Andy Carvin

4:05

[Comment From AlaskaDebAlaskaDeb: ]

I can't hear anything....Tips please?

Wednesday July 9, 2008 4:05 AlaskaDeb

4:05

[Comment From Kay YountKay Yount: ]

I met Elizabeth Edwards several months ago and she mentioned how much her blog and the comments of others helped her. I've tried to locate her blog many times, but have not been able to do so. Is it possible for you to send the link to me at kwyount@aol.com? Thank you so much. Kay

Wednesday July 9, 2008 4:05 Kay Yount

4:05

[Comment From SusanSusan: ]

Thank you Leroy!!

Wednesday July 9, 2008 4:05 Susan

4:05

[Comment From KarenKaren: ]

Lisa: If you plan on becoming an oncology nurse, you will no doubt learn a great deal simply by listening to each patient carefully. There is no one way any of us respond to treatment, either physically or mentally or emotionally. You will, no doubt, be trained in all aspects of therapies, and often asked questions about side effects, protocols, outcomes, etc. that we would ask our physicians too, but you are there -- we see you every time we have treatment. Mostly, take us seriously. Our lives, and the lives of those who love us, have been turned upside down. Some of us will be upbeat and cheerful, some of us frightened, some of us surly and unpleasant. You will have to treat all of us. I'd like to say that having cancer makes us all saints, easy people to be around, but that's not the case. Fear can make us regress, pain can, treatments can. The fact that you asked such a serious question so openly makes me very encouraged about your nursing career.

Wednesday July 9, 2008 4:05 Karen

4:05

Andy Carvin:

if you don't reload your page and hit the play button you won't hear the chat.

Wednesday July 9, 2008 4:05 Andy Carvin

4:05

[Comment From christian meyerchristian meyer: ]

Nice show Leroy:Question: Leroy/Laurie: What does hospice mean to you?

Wednesday July 9, 2008 4:05 christian meyer

4:05

[Comment From Betty Ann BrunoBetty Ann Bruno: ]

Hi, Leroy, Craig and I have just listened to you and Elizabeth Edwards, and want to say how very proud we are of you. We have so many wonderful memories of your outstanding work when you were on the KTVU Assigment Desk. You have always been a standout -- We love you and are grateful to have known you. Keep up the good work as long as you can!

Wednesday July 9, 2008 4:05 Betty Ann Bruno

4:05

[Comment From Douglas L. SaundersDouglas L. Saunders: ]

there isn't much funny about cancer - espcially pancreatic - so once needs to take your humor when you can find it

Wednesday July 9, 2008 4:05 Douglas L. Saunders

4:05

[Comment From francescafrancesca: ]

i hear both ...

Wednesday July 9, 2008 4:05 francesca

4:06

Andy Carvin:

@francesca: close the window that opened during the 1st hr

Wednesday July 9, 2008 4:06 Andy Carvin

4:06

Cristina Barthel:

Leroy, this is probably a difficult quesiton but I would like to know that once you do pass on to a better place will you want for this blog to continue and if so will Laurie take over and allow this community to conntinue?

Wednesday July 9, 2008 4:06 Cristina Barthel

4:06

[Comment From SS: ]

I borrowed a Dolly Parton wig during chemo. Even the doctor's office people didn't recognize me. Fun.

Wednesday July 9, 2008 4:06 S

4:06

[Comment From PatriciaPatricia: ]

I don't have cancer but have seen so many friends deal with it I figure it may well be my turn one day. Leroy and Elizabeth -- thank you for you example of grace under fire and for all I learned about how to be helpful to those living with cancer.

Wednesday July 9, 2008 4:06 Patricia

4:06

[Comment From GuestGuest: ]

It was great to hear your voice Leroy!

Wednesday July 9, 2008 4:06 Guest

4:06

[Comment From RobRob: ]

I always felt I would survive my prostate cancer with the help of medicine, but I was not ready for the long term impact of impotency. I'm no horndog, but I had no idea how fundamental potency was to my psyche --

Wednesday July 9, 2008 4:06 Rob

4:07

Cristina Barthel:

I hope it doesn't seem harsh of me, but you have made such a BIG, HUGE difference in my life wit hthis blog that it means a ton to me and I am sure many others!

Wednesday July 9, 2008 4:07 Cristina Barthel

4:07

Andy Carvin:

@francesca: it should be another browser window on your desktop. Just close it.

Wednesday July 9, 2008 4:07 Andy Carvin

4:07

[Comment From francescafrancesca: ]

andy: how???????????

Wednesday July 9, 2008 4:07 francesca

4:08

[Comment From PattePatte: ]

I'd like to ask Leroy the same question I posted to other chat room participants earlier: What is one surprising thing you have learned about yourself while living with cancer?

Wednesday July 9, 2008 4:08 Patte

4:08

[Comment From Meg CMeg C: ]

Just wondering... very early in your blog you mentioned your love of Hawaii. You asked your doctors to tell you when you should go. Is it time to go and enjoy a sunset and a drink?

Wednesday July 9, 2008 4:08 Meg C

4:08

[Comment From LillyLilly: ]

I don't seem to have a blue triangle play button. I just hear All Things Considered.

Wednesday July 9, 2008 4:08 Lilly

4:08

Andy Carvin:

Lilly, close the media player window, reload the my cancer blog, then hit the blog talk radio play button on the blog, above the chat window

Wednesday July 9, 2008 4:08 Andy Carvin

4:08

Cristina Barthel:

to Lily: if i can help any. go to the cancer blog page and refresh and you should see the updated link

Wednesday July 9, 2008 4:08 Cristina Barthel

4:09

[Comment From SteveSteve: ]

Are you going to take advantage of hospice?

Wednesday July 9, 2008 4:09 Steve

4:09

[Comment From hilaryhilary: ]

Leroy, do you ever just want to give up....you have been fighting such an amazing battle.

Wednesday July 9, 2008 4:09 hilary

4:09

[Comment From DoreenDoreen: ]

Hi Leroy, I have been reading your blog since your special last year. My husband has stage IV colon cancer and is currently on his second round of chemo. Friends and family have been suggesting alternative medicine Ex. Vitamin C packs and certain vitamins. Have you ever considered that type of treatment opposed to chemotherapy.?

Wednesday July 9, 2008 4:09 Doreen

4:09

[Comment From Lesa in KansasLesa in Kansas: ]

Leroy, are you on? I'd like to second Cristina's question - what would you like for your "family" here to do to continue this work?

Wednesday July 9, 2008 4:09 Lesa in Kansas

4:09

[Comment From RobRob: ]

As I said, depression was more intense after surgery than I expected

Wednesday July 9, 2008 4:09 Rob

4:09

[Comment From LillyLilly: ]

Thank you! I found it.

Wednesday July 9, 2008 4:09 Lilly

4:09

[Comment From Brian WornathBrian Wornath: ]

Several years ago we had a family member pass away with a GBM (GlioBlastoma Multiforme). Not only was it grueling on Joni, but it was arduous on the family. At one point when I was asked by Joni about her situation, I said “expect the best, and prepare for the worst.” That’s the only and probably the best all encompassing advise I could offer. This whole experience really opened my eyes as to the honesty of our healthcare system. Here a few words of CAUTION: I had heard about the “neglect” and “abuses” of HMO’s, some of which I witnessed first-hand, but also the doctors that the HMO contracts out with. Make sure not only your insurance is being forthright with you, but that the health professionals. I was amazed to see the neglect and abuse some doctors had toward not the patient, but the patient’s health insurance plan. It really reminded my of the situation when you buy a new car at the dealership, and they seemingly don’t want to fix any problems until your new car is out of warranty. Why? Because the car dealer can make more money from your car issues billed hourly to you ($75/hour) out of warranty, versus if they billed the car company ($35/hour) while under warranty. It comes down to profit maximization. Conclusion: Similarly, some patients are “worth” more money than other patients for treating the same disease, because their insurance companies will pay doctors more. Thus, doctors can and will discourage and/or intentionally misdiagno

Wednesday July 9, 2008 4:09 Brian Wornath

4:09

[Comment From AlaskaDebAlaskaDeb: ]

I have stage 4 breast cancer mets.right now I am doing OK on chemo, but I keep have people pushing me to make scrapbooks for my kids, or write them letters for the future when I am not here. I don't want to think of the harm my leaving will cause them, I want to be here to tell them all these things in person, not in some letter....am I just in denial or do you think it is OK to think about a future where I beat the odds, or am I in denial???

Wednesday July 9, 2008 4:09 AlaskaDeb

4:10

[Comment From BritBrit: ]

Leroy's Army. Just give me the word

Wednesday July 9, 2008 4:10 Brit

4:10

[Comment From GinaGina: ]

Leroy, when my mom had breast cancer, I definitely felt at times that all I could do was worry, and I wished I could have helped her more. For you, what has been the most loving, helpful thing a family member can do to support you through this experience?

Wednesday July 9, 2008 4:10 Gina

4:10

Cristina Barthel:

THank you Leroy!

Wednesday July 9, 2008 4:10 Cristina Barthel

4:10

[Comment From Allecia from HersheyAllecia from Hershey: ]

Leroy:Do you think it is foolish to believe you are still alive yet because you were meant to be the person chosen to address the reality of living with Cancer..and share it with the world?

Wednesday July 9, 2008 4:10 Allecia from Hershey

4:11

[Comment From Brian LloydBrian Lloyd: ]

Several years ago we had a family member pass away with a GBM (GlioBlastoma Multiforme). Not only was it grueling on Joni, but it was arduous on the family. This whole experience really opened my eyes as to the honesty of our healthcare system. I had heard about the “neglect” and “abuses” of HMO’s, some of which I witnessed first-hand, but also the doctors that the HMO contracts out with. Make sure not only your insurance is being forthright with you, but that the health professionals. I was amazed to see the neglect and abuse some doctors had toward not the patient, but the patient’s health insurance plan. It really reminded my of the situation when you buy a new car at the dealership, and they seemingly don’t want to fix any problems until your new car is out of warranty. Why? Because the car dealer can make more money from your car issues billed hourly to you ($75/hour) out of warranty, versus if they billed the car company ($35/hour) while under warranty. It comes down to profit maximization. Conclusion: Similarly, some patients are “worth” more money than other patients for treating the same disease, because their insurance companies will pay doctors more. Thus, doctors can and will discourage and/or intentionally misdiagnose despite the patients desire to have their live prolonged.

Wednesday July 9, 2008 4:11 Brian Lloyd

4:11

[Comment From GuestGuest: ]

Leroy, My husband has the same cancer you do. He's living with his cancer, but doesn't want anymore chemo. Without it his time will be shorter. He's really having a hard time trying to make the right decision for him. Any suggestions?

Wednesday July 9, 2008 4:11 Guest

4:11

[Comment From LeeAnnLeeAnn: ]

Leroy, I had brain cancer and still have severe cognitive issues. You said that the cancer had spread to your brain. Have you noticed any coginitve issues since it has spread to your brain?

Wednesday July 9, 2008 4:11 LeeAnn

4:11

[Comment From MargaretMargaret: ]

I hear alot of talk about various cancers on TV, and other media but one that I don't hear about is melanoma. I've heard people say that it is just skin cancer but IT IS MORE THAN JUST SKIN CANCER... Our skin is the largest organ in our body and melanoma isn't just cancer of the skin, it invades into our organs and other areas of the body. My husband has metastatic melanoma that has spread to his brain and lung. His prognosis...it will take his life. I hope that more funding and research will be used for finding a cure for melanoma.

Wednesday July 9, 2008 4:11 Margaret

4:11

[Comment From gracegrace: ]

I'm so grateful to those of you who responded about remission and recurrence. It feels like a taboo subject -- so much so that I initially resisted even posting here. My family and friends and health team are so relieved when I report on a clean scan and I feel more alone then because there are only a couple of people who can "hear" me talk about the fear and maybe the wish that the damn disease will just stop lurking and just rear its ugly head again so I can pursue the fight.

Wednesday July 9, 2008 4:11 grace

4:11

Andy Carvin:

folks - try to keep posts short - otherwise it pushes everything off the page and people can't read it. thanks!

Wednesday July 9, 2008 4:11 Andy Carvin

4:11

[Comment From kimmy in richmondkimmy in richmond: ]

"People are much stronger than they think they are."

Wednesday July 9, 2008 4:11 kimmy in richmond

4:11

[Comment From NancyNancy: ]

How many people check in to your blog?

Wednesday July 9, 2008 4:11 Nancy

4:12

Andy Carvin:

@nancy: more than 30,000 comments have been posted to the blog since it launched

Wednesday July 9, 2008 4:12 Andy Carvin

4:12

[Comment From GuestGuest: ]

alaskadeb - i think you should continue to believe you will be there but nothing in life is certain so if there is something you want them to know, write in down and maybe you it will never be read but if it has to be at least you did it

Wednesday July 9, 2008 4:12 Guest

4:12

[Comment From AmyJoAmyJo: ]

Thank you Leroy - I am a new patient coming to terms with this and trying to find my "inner" strength so to say. :)

Wednesday July 9, 2008 4:12 AmyJo

4:12

[Comment From mikemike: ]

commentator need to get closer to mike or speak up he is muffled

Wednesday July 9, 2008 4:12 mike

4:13

[Comment From BrianLloydBrianLloyd: ]

I guess the best and honest advice I could give Joni was:

Wednesday July 9, 2008 4:13 BrianLloyd

4:13

[Comment From GinaGina: ]

Thank you, Leroy!

Wednesday July 9, 2008 4:13 Gina

4:13

[Comment From KimKim: ]

I cannot get my husband to have that conversation about my stage 4 cancer and the future. Any suggestions about how to get him to open up with me more? To share his feelings? I believe he is in denial.

Wednesday July 9, 2008 4:13 Kim

4:13

[Comment From EllenEllen: ]

Did you consider participating in a cancer research clinical trial? Why/ why not?

Wednesday July 9, 2008 4:13 Ellen

4:13

[Comment From JohnJohn: ]

How did you come to terms to the fact that you have cancer?

Wednesday July 9, 2008 4:13 John

4:14

[Comment From Marcia GreerMarcia Greer: ]

Leroy thank you so much for the program - what is your typical day like? Are you able to get out of the house much?

Wednesday July 9, 2008 4:14 Marcia Greer

4:14

[Comment From hilaryhilary: ]

leroy....how much control do you want to play in your actual death? Have you thought about stockpiling medication, where you want to be...how do you hope to have it occur?

Wednesday July 9, 2008 4:14 hilary

4:14

[Comment From AnnAnn: ]

Leroy, my husband is suffering with the same cabcer you are, mets to liver, inoperable, and a node in his abdomen. He's struggling with the decision to go on a second line of chemo. Any suggestions?

Wednesday July 9, 2008 4:14 Ann

4:14

[Comment From HeidiHeidi: ]

For ten years I have been a chronic pain patient and must carefully walk the line between pain relief and being tagged with having medication seeking behavior. Cancer patients are in a position to help ALL pain patients, because their very serious pain is always taken seriously...and meds are developed to help them. Wouldn't it be GREAT if there were pain meds for all of US that ONLY relieved pain and didn't cause dizziness, nausea, and/orlethargy? Sadly, cancer is lucrative and gets attention that chronic pain alone will never merit. Is there anyway that joint efforts of the cancer groups and pain groups could lead to financing of medical research for the no side effect pain med for ALL?

Wednesday July 9, 2008 4:14 Heidi

4:14

[Comment From kimmy in richmondkimmy in richmond: ]

Dear Grace. I think all cancer survivors worry about recurrence. You are normal. I know it is difficult to talk about with friends and family. They want so much for everything to be OK.

Wednesday July 9, 2008 4:14 kimmy in richmond

4:14

[Comment From GuestGuest: ]

andy it says you have to log in to make comments but if I do that I lose the audio any suggestions?

Wednesday July 9, 2008 4:14 Guest

4:15

[Comment From hilaryhilary: ]

leroy, please mention carepages.com

Wednesday July 9, 2008 4:15 hilary

4:15

Andy Carvin:

@guest: no login required; just type a question and hit the send button

Wednesday July 9, 2008 4:15 Andy Carvin

4:15

[Comment From Debra from New HampshireDebra from New Hampshire: ]

Leroy, have you ever felt a deep rage that you were dragged into this battle. I remember your "Saving Private Ryan" blog post. Do you still feel that?

Wednesday July 9, 2008 4:15 Debra from New Hampshire

4:15

[Comment From SusanSusan: ]

Hi Leroy, What is heaven like to you? do you believe in an afterlife? If that is to personal, I understand. Thank you so much

Wednesday July 9, 2008 4:15 Susan

4:16

[Comment From Sherri BeadlesSherri Beadles: ]

This problem might not apply to you, Leroy, because you have colon cancer, but I wonder what you think about the guilt lung and ro some extent, liver cancer patients experience. When peole announces that a person has lung cancer, they always say "they didn't smoke." And when TV has to kill an evil person, they die slowly and painfully from lung cancer. How do you think people can deal with real or imagined quilt?

Wednesday July 9, 2008 4:16 Sherri Beadles

4:16

[Comment From BrianLloydBrianLloyd: ]

I guess the best and most honest advice that I could give Joni when asked by her when she was dying of cancer was: Hope for the best, but also be prepared for the “worst” I think the reality and honesty with her has not only cathartic for her, but also for me.

Wednesday July 9, 2008 4:16 BrianLloyd

4:16

[Comment From m j jacksonm j jackson: ]

Love you Leroy

Wednesday July 9, 2008 4:16 m j jackson

4:16

[Comment From LindaLinda: ]

Why did you decide not to do chemo?

Wednesday July 9, 2008 4:16 Linda

4:16

[Comment From AnneAnne: ]

Have you had misunderstandings or miscommunications with your doctors and how were they resolved?

Wednesday July 9, 2008 4:16 Anne

4:16

[Comment From BradleyBradley: ]

Leroy. My grandmother is a cancer survivor diagnosed in 1991 and in recession since 2003 and has been the most belligerent fighter of the disease and I just wanted to say how much your broadcast today moved me damn near to tears. And that bit about the difference between brain surgery and broadcasting was hilarious! But I did find it a little awkward to laugh at it just due to the gravity of the broadcast. But my grandmother's story is one I think would be good for your bloggers. She lost her right breast (she still can't remember what she did with it! HA!) and has spent a couple of years bed ridden with only my grandfather to take care of her. And you would never know it. She is just as busy now as she ever was before she retired. I have trouble during the week finding her to have a chat on her cell phone, because she's always helping someone else with glasses or immigration papers (she's fluent in spanish being mexican) or doing her duty as notary public, or moving someone to a new home. Just thought I'd share a story of strength thru the disease, thought it might be nice. :) thank you for your broadcast today and for your continued strength making your experiences so public.

Wednesday July 9, 2008 4:16 Bradley

4:16

[Comment From francescafrancesca: ]

leroy: what were the "practical " stuff that cahnged since cacner exploded??? like how do u sleep??? can u eat ? do you have sex? ( sorry if that is not appropriate?) . .when do YOU think u know the end will be very near.. what "thing" will happen?

Wednesday July 9, 2008 4:16 francesca

4:17

[Comment From GuestGuest: ]

As a wife of a cancer survivor - are support groups helpful? How to find the right one?

Wednesday July 9, 2008 4:17 Guest

4:17

[Comment From diane rdiane r: ]

what feels helpful or supportive to you. If you were to pick up a book about illness, what would you need to find there?

Wednesday July 9, 2008 4:17 diane r

4:17

[Comment From SusanSusan: ]

Leroy - Have you tried any of the alternative non-toxic therapies? There are two really good books, Outsmart your Cancer and Cancer, Step Outside the Box. Read them, as there are things that can be done to help cure your condition.. Good luck. I'm trying several right now and if they don't work, I'll try others.

Wednesday July 9, 2008 4:17 Susan

4:18

[Comment From JohnJohn: ]

Hello Leroy, I have a question. How did you come to terms with the fact that you have cancer? How do you live with the fact. Someone I knew died from cancer and we accepted the fact almost half-heartedly.

Wednesday July 9, 2008 4:18 John

4:18

[Comment From kimmy in richmondkimmy in richmond: ]

Leroy, I know this is personal but as a stage III colon cancer survivor who expects to be dealing with a recurrence, I wonder what I can do to help prepare my husband and children. ANy thoughts you care to share?

Wednesday July 9, 2008 4:18 kimmy in richmond

4:18

[Comment From DaleDale: ]

I know there will be a time when I can't do things on my own. I'm a stubborn, individual minded person. Did you have difficulty giving up that independence?

Wednesday July 9, 2008 4:18 Dale

4:19

[Comment From Joe S. in JohnsCreekJoe S. in JohnsCreek: ]

Leroy's blog.. is one of the BEST support groups ever:-) If it's new to you.. read back posts till you get the drift of it...

Wednesday July 9, 2008 4:19 Joe S. in JohnsCreek

4:19

[Comment From diane rdiane r: ]

any familiarity with Mindfulness and pain management

Wednesday July 9, 2008 4:19 diane r

4:19

[Comment From BrendaBrenda: ]

Do you believe you are getting special treatment from your doctors because of your high profile?

Wednesday July 9, 2008 4:19 Brenda

4:19

[Comment From Debra from New HampshireDebra from New Hampshire: ]

Thank you Leroy, the blog is my support group too.

Wednesday July 9, 2008 4:19 Debra from New Hampshire

4:19

[Comment From LaurieLaurie: ]

Leroy, I am a friend of Jays and have met you a couple of times - I wonder if you are still able to eat and drink your favorite foods - like mai tais and philly subs?

Wednesday July 9, 2008 4:19 Laurie

4:20

[Comment From Dottie HargroveDottie Hargrove: ]

How do you face the reality of death. I am a survivor but my sister lost her battle with cancer, NEVER once did she accept the death part. Is that ok

Wednesday July 9, 2008 4:20 Dottie Hargrove

4:20

[Comment From diane rdiane r: ]

what meaning have you found in this experience

Wednesday July 9, 2008 4:20 diane r

4:20

[Comment From NancyNancy: ]

The blog is my support group too, thank you so much. Is there a way to be able to find people with the same cancer?

Wednesday July 9, 2008 4:20 Nancy

4:20

[Comment From KitKit: ]

Thanks for the program. I'll read the blog now, too. I've had cancer twice - unrelated cancers. My sister died a couple of months ago of a metastatic cancer. They never did find the primary. I deal quite a bit with that survivor guilt thing. I have myself convinced that my pets made the difference. She and I both have (had) family and friends who were truly supportive. I also had the pets who needed me and were there for me 24/7. I have seemingly walked away from a stage three cancer. I wonder if it's because I had a cat to hold my hand and a dog who needed me to walk him.

Wednesday July 9, 2008 4:20 Kit

4:20

[Comment From RuthRuth: ]

sorry to be a pest - but I hit the sound and get this "blog talk radio" and then nothing after that?? any suggestions? would love to be able to hear the conversation?

Wednesday July 9, 2008 4:20 Ruth

4:20

Andy Carvin:

@ruth: try reloading your browser

Wednesday July 9, 2008 4:20 Andy Carvin

4:20

[Comment From GuestGuest: ]

Leroy: Do your drs & medical care givers read and post on this blog?

Wednesday July 9, 2008 4:20 Guest

4:21

[Comment From StephenStephen: ]

I just want to ask if Mrs. Edwards or Mr. Sievers have any take on charities for cancer research that sometimes mismanage donations? Unfathomable amounts of money go to cancer researchers for their work, but we are still so limited in progress. Do you guys think their is any way to ensure that donated funds go to the right people for the most effective and productive research to be done?

Wednesday July 9, 2008 4:21 Stephen

4:21

[Comment From AnneAnne: ]

Do you feel that your voice/feelings/reactions should be recorded in your medical record alongside notes & observations of your health care providers ?

Wednesday July 9, 2008 4:21 Anne

4:21

[Comment From JeffJeff: ]

Final Exit: The Practicalities of Self-Deliverance and Assisted Suicide for the Dying, is a controversial 1991 book by Derek Humphry

Wednesday July 9, 2008 4:21 Jeff

4:21

[Comment From Brian LloydBrian Lloyd: ]

I know everyone is looking for information. I'm not trying to promote a specific Website, but I think that sciencedaily.com consolidates a lot of the most research articles. The articles are for the most part put in a news-format, which most of us can understand. Anyway, I find that any shred information had be a glimmer of hope.

Wednesday July 9, 2008 4:21 Brian Lloyd

4:21

[Comment From SteveSteve: ]

Any insights from the decisions you've made during the course your disease and advice for people who are a few steps behind you?

Wednesday July 9, 2008 4:21 Steve

4:22

[Comment From GuestGuest: ]

Leroy had you ever looked into any alternative protocol or treatments to fight your cancer? There seems to be some out there with some promising outcomes.

Wednesday July 9, 2008 4:22 Guest

4:22

[Comment From EllenEllen: ]

Did you go to appointments by yourself or did Laurie (or someone else) usually go w/ you to have a 2nd set of ears?

Wednesday July 9, 2008 4:22 Ellen

4:23

[Comment From ErinErin: ]

What about your communicating with so many people *virtually* feels real and what does not feel as real? It is clear you are loved.

Wednesday July 9, 2008 4:23 Erin

4:23

Cristina Barthel:

Leroy it is great to find peace! Going in peace is what you need. if you don't find peace then you won't go in peace and that is so important! So, I am sooo happy you found peace. That is when I knew my pops was ok to leave, he was on life support at Moffitt and he fought so hard to get off of it to be able to go home with hospice and 2 days later he went to a better place. Finding peace, which to my dad was being in his HOME, with his family and knowing that he had taken care of everything and all was in order, is key!

Wednesday July 9, 2008 4:23 Cristina Barthel

4:23

[Comment From JohnJohn: ]

Wednesday July 9, 2008 4:23 John

4:23

[Comment From BritBrit: ]

Why not make cancer support your role. We need someone to help raise real money for people who are sick, something that LiveStrong and the other organizations don't do. Why not use your name to help get that started?

Wednesday July 9, 2008 4:23 Brit

4:23

[Comment From AmyJoAmyJo: ]

Have you ever had the opportunity to search outside of the US for treatment options and if so, have you found anything that possed to be more effective in prolonging your life?

Wednesday July 9, 2008 4:23 AmyJo

4:23

[Comment From PatPat: ]

I see many parallels between your experiences and mine with MS (though my mom died of cancer in late '04) and she was a cancer nurse. But I did used to feel like my life was hijacked. I had to hijack it back.

Wednesday July 9, 2008 4:23 Pat

4:23

[Comment From AmyAmy: ]

LeRoy, I'm getting on late so I apologize if this has already been asked. Do you fear the actual dying process - the last few hours? Thank you...we appreciate you so much.

Wednesday July 9, 2008 4:23 Amy

4:24

[Comment From AnnAnn: ]

I recommend to all friends, life-givers, other family and patients (for lack of a better word) that you look into a free, private 24/7 space at the non-profit website www.caringbridge.org. It keeps everyone UTD and connected. Check it out. I feel so much better now that I can see or read notes from my faraway loved ones and they feel the same about me.

Wednesday July 9, 2008 4:24 Ann

4:25

[Comment From GayleGayle: ]

Will you do any more NPR chats? I know we are all finding this so interesting. Thank you.

Wednesday July 9, 2008 4:25 Gayle

4:25

[Comment From karenkaren: ]

referring to when you had cancer but looked 'normal' - if you were at that point of your cancer and were job hunting, do you think you would have told potential employers?

Wednesday July 9, 2008 4:25 karen

4:25

[Comment From mikemike: ]

are we ever cancer free as the doctor has told me at my last blood test results meeting. For some reason when I heard cancer I feel I will always have it. Who is right?

Wednesday July 9, 2008 4:25 mike

4:25

[Comment From JohnJohn: ]

Wednesday July 9, 2008 4:25 John

4:25

[Comment From ElleElle: ]

How do you manage your pain? do you have a pain management team? Have you just had to adjust and see what works best for you?

Wednesday July 9, 2008 4:25 Elle

4:26

[Comment From MyrnaMyrna: ]

At this time, what things in your life bring you joy?

Wednesday July 9, 2008 4:26 Myrna

4:26

[Comment From GuestGuest: ]

andrew? It began from the beginnng

Wednesday July 9, 2008 4:26 Guest

4:27

[Comment From CathyCathy: ]

I'm stage IV breast cancer & my biggest problem is dealing with depression...is this a problem for you, if so how do you deal with it?

Wednesday July 9, 2008 4:27 Cathy

4:27

[Comment From diane rdiane r: ]

how has your definition of yourself changed over the last 2 years. do you feel identified beyond intellect, successes, etc

Wednesday July 9, 2008 4:27 diane r

4:27

[Comment From GuestGuest: ]

When are you going to Hawaii again?

Wednesday July 9, 2008 4:27 Guest

4:27

[Comment From dianadiana: ]

I have multiple myeloma - I am in remission - the fear of it coming back scares me everyday

Wednesday July 9, 2008 4:27 diana

4:28

[Comment From TimTim: ]

Leroy -- thank you for all you have done through your blog and this chat. I am the father of a 3 year old pediatric brain tumor survivor. As we move into survivorship mode after 2 years in treatment, my wife and I are both changing jobs and addressing a change in health insurance. We were blessed with excellent coverage my wife COBRA'd from her former job, but now we're moving into what appears to be less-than-perfect (but far more common) coverage. I'm curious what your experience with your health insurance provider is/was through the process.

Wednesday July 9, 2008 4:28 Tim

4:28

Cristina Barthel:

Diana: enjoy your "remission" days, smile and laugh often!

Wednesday July 9, 2008 4:28 Cristina Barthel

4:28

[Comment From Allecia from HersheyAllecia from Hershey: ]

Leroy, how would you like to be remembered?What would you want your legacy to be?

Wednesday July 9, 2008 4:28 Allecia from Hershey

4:28

Cristina Barthel:

Diana: try not to think of what could be too much...these are the days to enjoy when the "beast" is at rest!

Wednesday July 9, 2008 4:28 Cristina Barthel

4:28

[Comment From francescafrancesca: ]

leroy: I thank you ....for everything . .from the very first day

Wednesday July 9, 2008 4:28 francesca

4:29

[Comment From jenjen: ]

Do you have any regrets in life. I hope that you do not.

Wednesday July 9, 2008 4:29 jen

4:29

[Comment From AlaskaDebAlaskaDeb: ]

I have stage 4 breast cancer, do you think it means I am in denial when I imagine a future that includes me living? Someone has to beat the odds, why not me?

Wednesday July 9, 2008 4:29 AlaskaDeb

4:29

[Comment From LeeAnnLeeAnn: ]

Leroy, I refused my doctors' orders for khemo and decided to do only radation treatment. How many second opinions did you get before choosing your cancer treatment plan?

Wednesday July 9, 2008 4:29 LeeAnn

4:29

[Comment From LisaLisa: ]

Karen: absolutely no need to discuss up front (in an interview) to employers and many are protected by the americans with disabilities act. Check it out. If the employer requires all new hires to undergo a health eval then all must.

Wednesday July 9, 2008 4:29 Lisa

4:29

[Comment From francescafrancesca: ]

everytime I see someone with a Hawaii shirt I will think of you

Wednesday July 9, 2008 4:29 francesca

4:29

[Comment From JohnJohn: ]

Wednesday July 9, 2008 4:29 John

4:30

[Comment From francescafrancesca: ]

tim???? Vampdaddy???????

Wednesday July 9, 2008 4:30 francesca

4:30

[Comment From dianadiana: ]

thanks Cristina - I sure do try - I wish that I did not have to work for a living so that I could enjoy my days better - but it is better than the alternative

Wednesday July 9, 2008 4:30 diana

4:30

[Comment From GuestGuest: ]

Do you want to pass at home or in an institutional setting?

Wednesday July 9, 2008 4:30 Guest

4:30

[Comment From outside looking inoutside looking in: ]

My mother-in-law has stage IV lung cancer. It seems like I am and the only one in the house who is acknowledging that this condition has no cure. How do you deal with a cancer patient that is in denial as to the prognosis?

Wednesday July 9, 2008 4:30 outside looking in

4:30

Cristina Barthel:

diana: this is true! just think YOU CAN WORK THOUGH!!!!!!!

Wednesday July 9, 2008 4:30 Cristina Barthel

4:30

Cristina Barthel:

Diana: :) :)

Wednesday July 9, 2008 4:30 Cristina Barthel

4:31

[Comment From Dianne E.Dianne E.: ]

Leroy, you and Elizabeth both said you weren't quite comfortable with the role model idea. But even on the days when we sense you don't feel terribly strong, I dont hear whining. As a stage IV colon cancer patient undergoing chemo every 4 weeks for the recurrence in my lungs , I find I have at least one whiny day a month. For me, one of the best things about the blog, is to be able to express myself honestly without without putting a burden on my loved ones. I can be blunt without having to seen the pain in someone's eyes. So even though your calmness is a model for us, do you have those rotten, whiny, I'm-feeling-sorry-for-myself days? Thank you for giving a voice and lending a shoulder at the same time.

Wednesday July 9, 2008 4:31 Dianne E.

4:31

Cristina Barthel:

Diana: Hey, you never know...try to take an extended leave at work..if possible ;)

Wednesday July 9, 2008 4:31 Cristina Barthel

4:31

[Comment From AnneAnne: ]

Do you get angry? Do you allow yourself to express anger with Laurie or your close friends?

Wednesday July 9, 2008 4:31 Anne

4:31

[Comment From SteveSteve: ]

I really want to thank you for your honest, straightforward discussion of end stage issues which we stage 4 patients will surely encounter, but rarely hear discussed.

Wednesday July 9, 2008 4:31 Steve

4:31

[Comment From RonRon: ]

I have been a similar journey for the past 5 years fighting my colon cancer. I have survived the surgery, chemo/radiation, metastasis to my lungs, more chemo ...and 3 years of side effects. Right now I am in remission and read your blog daily. I are a valued partner in this fight. I appreciate your honsety and frankness. I too have me outspoken to help others to become aware. Leroy you are an inspiration and you have kept me fighting too.

Wednesday July 9, 2008 4:31 Ron

4:31

[Comment From mary jomary jo: ]

my brother died of cancer after a long, mosty quiet struggle that lasted 12 years. when we were together, he rarely brought up his disease and i followed his lead. what made you different?

Wednesday July 9, 2008 4:31 mary jo

4:32

[Comment From BritBrit: ]

Leroy, not to be a pain...but aren't you turning your back on cancer by not taking chemo?

Wednesday July 9, 2008 4:32 Brit

4:32

[Comment From Debra from New HampshireDebra from New Hampshire: ]

To "from the outside looking in": why does she have to "accept" it at all?

Wednesday July 9, 2008 4:32 Debra from New Hampshire

4:32

[Comment From BarbaraBarbara: ]

I don't understand how this chat room is working. Who is Cristina Barthel? Is LeRoy actually answering any of these questions?

Wednesday July 9, 2008 4:32 Barbara

4:33

Andy Carvin:

Barbara: Leroy is answering in the audio stream. Cristina is just one of the chat participants. Press the trinagular play button

Wednesday July 9, 2008 4:33 Andy Carvin

4:33

[Comment From hilaryhilary: ]

leroy....you have made such a huge difference for so many!! How many of us get to know that we have lived what we want our legacy to be? You are a great man! Thank you for your honesty and caring.

Wednesday July 9, 2008 4:33 hilary

4:33

Cristina Barthel:

Hi! I am just another blogger like you

Wednesday July 9, 2008 4:33 Cristina Barthel

4:33

[Comment From CathiCathi: ]

When Stephanie ( from the blog ) died her words for us were "forgive everything". Do you feel "forgiveness" is part of your process, as well?

Wednesday July 9, 2008 4:33 Cathi

4:33

Cristina Barthel:

i am just a little talkatibve today so why not.

Wednesday July 9, 2008 4:33 Cristina Barthel

4:34

[Comment From PatPat: ]

@outside looking in- My mom did that. She will get to a point where she won't be able to deny it and then everyone else will have to rush around doing everything at the last minute. Sorry... I wish my mom had let us in earlier to help her. She didn't. She suffered alone by choice (or denial), Cancer doesn't make people into different people. You can't be in denial when you are on your deathbed. I feel bad for her because she's not allowing people to love her and help her.

Wednesday July 9, 2008 4:34 Pat

4:34

[Comment From JayJay: ]

how do I get the audio stream?

Wednesday July 9, 2008 4:34 Jay

4:34

[Comment From dianadiana: ]

I appreciate Cristina

Wednesday July 9, 2008 4:34 diana

4:34

[Comment From Laurie HirthLaurie Hirth: ]

Outside looking in? why should your mother accept the fact that her disease is terminal? Shouldn't she be allowed to fight it with the idea she can beat it?

Wednesday July 9, 2008 4:34 Laurie Hirth

4:34

[Comment From Debbie HuntsmanDebbie Huntsman: ]

I am sorry that I did not get to call in, I was driving and although I was tempted, I stuck to my hard and fast rule not to use my cell phone while I am behind the wheel. I just got back from picking up a box of advanced reader's copies of my cancer year book. I was glad to hear you say that you could not get your arms around the community of people who visit your website and had a hard time understanding how you are helping people. Do you have any regrets about being so public about your illness?

Wednesday July 9, 2008 4:34 Debbie Huntsman

4:34

Cristina Barthel:

THANKS Diana!

Wednesday July 9, 2008 4:34 Cristina Barthel

4:34

Cristina Barthel:

It was really nice talking with you! :)

Wednesday July 9, 2008 4:34 Cristina Barthel

4:34

[Comment From GuestGuest: ]

Have you activated a DO NOT RESUCITATE status yet?

Wednesday July 9, 2008 4:34 Guest

4:35

[Comment From hilaryhilary: ]

Leroy, are you having any sort body work, accupunture, massage, healing sessions, or anything to help manage your pain?

Wednesday July 9, 2008 4:35 hilary

4:35

[Comment From outside looking inoutside looking in: ]

Debra you are right, she doesn't. I guess I just have to suffer in silence. sorry to have asked the question. It's just that it is so frustrating for the caregiver.

Wednesday July 9, 2008 4:35 outside looking in

4:35

[Comment From JeffJeff: ]

Leroy, When you go to the art museum, what painting do you enjoy the most?

Wednesday July 9, 2008 4:35 Jeff

4:35

[Comment From LeeAnnLeeAnn: ]

Leroy, how do you decide whether or not tell someone that you have cancer? What are the factors that determine that decision. I find myself struggling with telling people that I had cancer for fear of receiving pitty from them.

Wednesday July 9, 2008 4:35 LeeAnn

4:35

[Comment From TedTed: ]

did your dr. consult any of the famous cancer centers about your treatments?

Wednesday July 9, 2008 4:35 Ted

4:36

Andy Carvin:

Jay, click the triangular play button

Wednesday July 9, 2008 4:36 Andy Carvin

4:36

[Comment From BarbaraBarbara: ]

I'm not blaming this on "chemo brain," (I've been on chemotherapy for the past 18 months, but I don't see a triangular button to press in order to see LeRoy's replies. Help!

Wednesday July 9, 2008 4:36 Barbara

4:36

Andy Carvin:

the button is above the chat window, where it says blogtalkradio

Wednesday July 9, 2008 4:36 Andy Carvin

4:36

[Comment From LisaLisa: ]

Cristina, I've been enjoying your comments too.

Wednesday July 9, 2008 4:36 Lisa

4:36

[Comment From BritBrit: ]

Leroy are you going to have a wild weekend or a bucket list weekend? Maybe get a tattoo or something? Dye your hair, you know, just something crazy while you still can.

Wednesday July 9, 2008 4:36 Brit

4:37

[Comment From diane rdiane r: ]

my father died of prostate cancer after radiation, chemo, surgeries, my sister died of ovarian cancer after all the same, I am alive after both uterine and colon cancer, and refused chemo----go figure---thanks for emphasizing there is no one path, one size does not fit all, do your research, have you advocates, and communicate well with drs

Wednesday July 9, 2008 4:37 diane r

4:37

Cristina Barthel:

Thanks Lisa! I am happy that we can all come together like this, not knowing eachother and just chat. :)

Wednesday July 9, 2008 4:37 Cristina Barthel

4:37

[Comment From BritBrit: ]

Barbara, do you see a blue oval shape above this chat window?

Wednesday July 9, 2008 4:37 Brit

4:37

[Comment From LillyLilly: ]

My button was a wide blue oval above the chat window, and I had to click on the little white triangle on the left side if it.

Wednesday July 9, 2008 4:37 Lilly

4:38

[Comment From guestguest: ]

What do you think of the upcoming presidential election? I'll bet you wish you were still producing Night Line or something similar.

Wednesday July 9, 2008 4:38 guest

4:38

[Comment From francescafrancesca: ]

is Laurie against the decision of not resuciate?

Wednesday July 9, 2008 4:38 francesca

4:38

[Comment From Debra from New HampshireDebra from New Hampshire: ]

You don't have to suffer in silence. Some cancer patients really just don't want to live in cancerworld. Stay here with the blog, do what you can for her. As Laurie said this AM you are one of the "Life Givers".

Wednesday July 9, 2008 4:38 Debra from New Hampshire

4:38

[Comment From HeatherHeather: ]

How accurately do you feel cancer is portrayed in movies and on television? Do you feel that if it is not accurate that it gives newly diagnosed patients false views of the disease?

Wednesday July 9, 2008 4:38 Heather

4:39

[Comment From LisaLisa: ]

Me too

Wednesday July 9, 2008 4:39 Lisa

4:39

[Comment From CathiCathi: ]

Do you and Laurie have daily help: cooking, nursing, doing the day-to-day stuff?

Wednesday July 9, 2008 4:39 Cathi

4:39

Cristina Barthel:

OMG...Bucket List! Wha a great movie

Wednesday July 9, 2008 4:39 Cristina Barthel

4:39

[Comment From guestguest: ]

my audio stops at 29 mins and 08 seconds...when I restart it that's the same point at which it stops and restarts at the beginning.

Wednesday July 9, 2008 4:39 guest

4:39

Cristina Barthel:

So touching...so real.!

Wednesday July 9, 2008 4:39 Cristina Barthel

4:39

[Comment From PatPat: ]

How does healthcare insurance affect your treatment

Wednesday July 9, 2008 4:39 Pat

4:39

[Comment From Graham G. HawksGraham G. Hawks: ]

I read the blog responses today on NPR. The last one was about non-traditional treatments from the Hippocrates institute. In it ,the writer says her husband has had 25 months cancer free when he had litle chance of survival. His quality of life is excellent. Leroy, have you considered such treatment? And thank you so much for your blog. It has helped me tremendously. -Graham.

Wednesday July 9, 2008 4:39 Graham G. Hawks

4:39

Cristina Barthel:

it took me until 2 weeks ago to see that movie...but so happy I did.

Wednesday July 9, 2008 4:39 Cristina Barthel

4:39

[Comment From LauraLaura: ]

Tell us some of your favorite things - type of music, books, ice cream flavor, anything else you want to share that makes you happy.

Wednesday July 9, 2008 4:39 Laura

4:40

[Comment From MargaretMargaret: ]

IWhat is the differences between MRI's, PET Scans, and CT Scans?

Wednesday July 9, 2008 4:40 Margaret

4:40

[Comment From AmyAmy: ]

Leroy, I'm a long-time blog reader. Thanks to you and Laurie for your generosity with your time and feelings - you've made a huge difference in so many lives, including mine, and those of my family and friends suffering from cancer.

Wednesday July 9, 2008 4:40 Amy

4:40

[Comment From mikemike: ]

is do not resusitate order a good idea I had a heart attack in 2001 I wouldn't be here if I had do not resusitate order

Wednesday July 9, 2008 4:40 mike

4:40

[Comment From LauraLaura: ]

LOL Leroy!

Wednesday July 9, 2008 4:40 Laura

4:40

[Comment From BarbaraBarbara: ]

I do not see a blue oval shape above this chat window. In fact, there is nothing above the window on my display screen. Thanks for offering to help, but I'm just not finding it on my computer.

Wednesday July 9, 2008 4:40 Barbara

4:40

[Comment From ChristineChristine: ]

I can't 'see' any of Leroy's responses will they be made part of the script later? I'm at work and cant' get the talk

Wednesday July 9, 2008 4:40 Christine

4:40

[Comment From guestguest: ]

Favorite wine?

Wednesday July 9, 2008 4:40 guest

4:41

Andy Carvin:

we'll post audio and chat logs later

Wednesday July 9, 2008 4:41 Andy Carvin

4:41

[Comment From GuestGuest: ]

Do you want to pass at home or in an institution?

Wednesday July 9, 2008 4:41 Guest

4:41

[Comment From GuestGuest: ]

I do that type of energy work. "Acupuncture with no needles." My experience is it's very helpful with pain and also with "acceptance" and many other challenges. I have been honored to be asked to be with over 50 people as they transition from life to death and to assist their families in the hospital or hospice setting or at home. I actually wrote to you twice about my work (privately -- I am not trying to advertise or promote myself). I just wanted to give you information about these non-"Western Medicine" methods. I still encourage you. May you have the best possible outcome surrounded by those you love and who love you.

Wednesday July 9, 2008 4:41 Guest

4:41

Cristina Barthel:

Before I sign off I would like to say THANK YOU, again, Leroy for being here this afternoon to talk to us! Thank you Andy and Thank you NPR team for the questions! To all (Diana and Lisa specifically), it was nice talking and see you on the blog tomorrow. :) Take care all!

Wednesday July 9, 2008 4:41 Cristina Barthel

4:41

[Comment From diane rdiane r: ]

do you feel the prevalance of cancer is based in our environmental toxins

Wednesday July 9, 2008 4:41 diane r

4:41

[Comment From BritBrit: ]

Just listening to this is very emotional to me, and I am sure the rest of us. How are you holding it together. Since this has the feel of the last time we will hear from you.

Wednesday July 9, 2008 4:41 Brit

4:42

[Comment From zaczac: ]

Just curious but, can you drink a glass of wine or a beer with dinner? Do you avoid certain activities or substances because of risk or effects?

Wednesday July 9, 2008 4:42 zac

4:42

[Comment From outside looking inoutside looking in: ]

My frustration is that she lays around all day looking like she is on the verge of death. So, its not like she is tyring to enjoy living life even though she believes she will beat this thing. I truly want her to beat it and be the miracle. But it saps my energy to see her acting like she is on the verge yet at the same time denying the prognosis. I don't know if she is truly feeling poorly, or a ploy to get attention.

Wednesday July 9, 2008 4:42 outside looking in

4:43

[Comment From HelenHelen: ]

Do you have any advice for health care professionals who work with cancer patients ? Thanks for your blog, I have learned so much from you.

Wednesday July 9, 2008 4:43 Helen

4:43

[Comment From SallySally: ]

You mentioned you still enjoy all the things you used to, for example, a good bottle of wine. What is your favorite?

Wednesday July 9, 2008 4:43 Sally

4:43

[Comment From LisaLisa: ]

Barbara, I don't know if this will help or not, but here is the URL I'm seeing, and I do have the button

Wednesday July 9, 2008 4:43 Lisa

4:43

[Comment From karenkaren: ]

leroy- thank you so much about your open conversation. I hope you do it again real soon.

Wednesday July 9, 2008 4:43 karen

4:43

[Comment From LisaLisa: ]

http://www.npr.org/blogs/mycancer/2008/07/live_chat_with_leroy_sievers.html

Wednesday July 9, 2008 4:43 Lisa

4:44

[Comment From amyamy: ]

How do you feel when people want to blame other's cancer diagnosis on lifestyle? Does anyone deserve cancer?

Wednesday July 9, 2008 4:44 amy

4:44

[Comment From Allecia from HersheyAllecia from Hershey: ]

Leroy,let's talk abut what you like?Favorite type of music? Ice cream? Author? After all..you're still here. :>)(I like John Denver,mint Ice cream,and Nora Roberts)

Wednesday July 9, 2008 4:44 Allecia from Hershey

4:44

[Comment From CathiCathi: ]

There is a trial going on (or beginning) in Winston - Salem. It's for late stage cancer patients, and is based on a drug which cured 100% of mice. Have you looked into this?

Wednesday July 9, 2008 4:44 Cathi

4:44

[Comment From hilaryhilary: ]

leroy, a dear friend of mine died of brain cancer last year. Towards the end he didn't want to see people. Do you feel like you'd like to isolate yourself and live your life surrounded by just a few close people and shut out the masses other than by communicating through your blog?

Wednesday July 9, 2008 4:44 hilary

4:44

[Comment From Debra from New HampshireDebra from New Hampshire: ]

What time of the day do you read the comments on your blog and write your daily posts? Is it a group activity or just something you do with Laurie?

Wednesday July 9, 2008 4:44 Debra from New Hampshire

4:45

[Comment From DianaDiana: ]

Leroy, I had breast cancer two years ago, with surgery and chemo. I have always had trouble referring to myself as a "cancer survivor", as I feel I won't know if I am a cancer survivor until the day that I end up dying from something else. What does Leroy think of the term "cancer survivor" being used so freely by everyone who is still alive but has, or had, cancer?

Wednesday July 9, 2008 4:45 Diana

4:45

[Comment From MichelleMichelle: ]

Thank you for your honesty, it means so much to us! What advice would you give to the wives of stage IV patients? What can we do to help, what should we avoid doing?

Wednesday July 9, 2008 4:45 Michelle

4:46

[Comment From Nicole from Washington DCNicole from Washington DC: ]

Everyone says that since you're 6'5" and have always been a big guy, that everyone always expects you to be brave. Well, my mom was 5 foot nothing and the bravest strongest woman I ever knew while she fought her 2 year battle with lung cancer. But one downside is that she was so brave that she never admitted to me, her daugther, that she really believed she would die of this. She didn't prepare herself or us (practically and emotionally), she didn't talk about it - all she talked about was fighting to be part of that 5% that lived 5 years. We all knew the reality, but we didn't ever want to burst her hope. So now that she's gone....it was almost harder for us to accept that she had really lost her battle. We were left almost stunned that such a life force had actually left us. When talking with your family, how do you balance your strength and will to fight with the realities that the disease may win and steal you away from them?

Wednesday July 9, 2008 4:46 Nicole from Washington DC

4:46

[Comment From diane rdiane r: ]

you are so much more than the body that is struggling

Wednesday July 9, 2008 4:46 diane r

4:46

[Comment From BritBrit: ]

I am not wishing for that, it just sounds like that.

Wednesday July 9, 2008 4:46 Brit

4:46

[Comment From karenkaren: ]

your responses will be helpful to my spouse- when I share this with him. thank you so much.

Wednesday July 9, 2008 4:46 karen

4:46

[Comment From outside looking inoutside looking in: ]

Are you familar with the drug Alimta? Is it palliative or is it a drug that actually tries to remove the cancer?

Wednesday July 9, 2008 4:46 outside looking in

4:46

[Comment From francescafrancesca: ]

amy???? swiss miss here

Wednesday July 9, 2008 4:46 francesca

4:47

[Comment From MattMatt: ]

I am a pastor...how can I best minister to folks in my congregation whose lives have been touched by cancer?

Wednesday July 9, 2008 4:47 Matt

4:47

[Comment From Colorado CupcakeColorado Cupcake: ]

I don't have cancer. We all have challenges in daily life and your blog has given me strength to face my daily challenges. Your courage while climbing this "mountain" makes my daily life easier. Thanks for inspiring we non-cancer people.

Wednesday July 9, 2008 4:47 Colorado Cupcake

4:47

[Comment From GuestGuest: ]

What percentage of your family/friends would you say have bailed on you or not been there for you since your reaccurance?

Wednesday July 9, 2008 4:47 Guest

4:47

[Comment From Debra from New HampshireDebra from New Hampshire: ]

To on the outside lookin in: I'm so sorry to hear how hard this is for you. If she were bopping around in happy denial it would certainly be easier to take. Try to keep a bit of joy in your own life. The blog community has been of enormous help to me, give it a try. Sending you strength...

Wednesday July 9, 2008 4:47 Debra from New Hampshire

4:47

[Comment From BritBrit: ]

Leroy, MAC or PC?

Wednesday July 9, 2008 4:47 Brit

4:48

[Comment From diane rdiane r: ]

what has cancer/experience given you that is positive/

Wednesday July 9, 2008 4:48 diane r

4:48

[Comment From PatPat: ]

Why would someone want to pull away from anyone? Or to not want to see anyone? Do you know?

Wednesday July 9, 2008 4:48 Pat

4:48

[Comment From Karen (a survivor in AK)Karen (a survivor in AK): ]

Will we hear any future commentaries from you on NPR? I think that these pieces have helped the general population understand some of the realities of dealing with cancer and hopefully raised awareness. Thank you so much for all you've done. You have achieved your own definition of success by having made a difference in the lives of many, myself included.

Wednesday July 9, 2008 4:48 Karen (a survivor in AK)

4:49

[Comment From BarbaraBarbara: ]

Thank you, Lisa! I can hear it now.

Wednesday July 9, 2008 4:49 Barbara

4:49

[Comment From GuestGuest: ]

Hi swiss miss, although I don't think I know you

Wednesday July 9, 2008 4:49 Guest

4:49

[Comment From MinaMina: ]

Have your views on cancer research and possible cures and government funding to research?

Wednesday July 9, 2008 4:49 Mina

4:49

[Comment From GinaGina: ]

Nicole, that's exactly what happened with my mom who battled breast cancer for 6 years. It is definitely tough balancing the hope with the reality of the disease and having those tough conversations with family. By the way, my mom was also 5 foot 1 or so :)

Wednesday July 9, 2008 4:49 Gina

4:49

[Comment From CathiCathi: ]

Are you doing ANYTHING which might bring about remission or cure. We on the blog are still hopeful for a reprieve for you.

Wednesday July 9, 2008 4:49 Cathi

4:49

[Comment From HeatherHeather: ]

Did you consider writing a book about your experience with cancer?

Wednesday July 9, 2008 4:49 Heather

4:50

[Comment From MarieMarie: ]

Where do you get your inspiration and courage to fight your cancer?

Wednesday July 9, 2008 4:50 Marie

4:50

[Comment From Joe S. in JohnsCreekJoe S. in JohnsCreek: ]

Matt--as a cancer "survivor"...let 'em talk .. and say "mmh hhh." a lot..they'll guide you to the answer they want or need at the time~

Wednesday July 9, 2008 4:50 Joe S. in JohnsCreek

4:50

[Comment From LeeAnnLeeAnn: ]

Leroy, Thank you so much for doing this discussion. My question is What , if anything, would you like to do before you pass on?

Wednesday July 9, 2008 4:50 LeeAnn

4:50

[Comment From Debra from New HampshireDebra from New Hampshire: ]

No worries Leroy, you've already endorsed cupcakes and frosting.

Wednesday July 9, 2008 4:50 Debra from New Hampshire

4:50

[Comment From LisaLisa: ]

Your welcome, Barbara.

Wednesday July 9, 2008 4:50 Lisa

4:50

[Comment From Colorado CupcakeColorado Cupcake: ]

Has Edward Kennedy been in touch with you? You with him?

Wednesday July 9, 2008 4:50 Colorado Cupcake

4:51

[Comment From PatPat: ]

Do you miss work?

Wednesday July 9, 2008 4:51 Pat

4:51

[Comment From Dr. Art MartinDr. Art Martin: ]

For 30 Years I have been reversing Deathe warrants given by doctors. You can recover from Cancer no matter how serious it is is. I have hundreds of case histories of nrecovery. My Father was given 3 months to live with pancreatic Cancer. He lived for 15 more years and did not die of cancer. I would like to help if you will give me a chance. I have written a book Your Body is Talking are You listening, I will sen you one

Wednesday July 9, 2008 4:51 Dr. Art Martin

4:51

[Comment From MarieMarie: ]

Will your blog be a book someday?

Wednesday July 9, 2008 4:51 Marie

4:51

[Comment From outside looking inoutside looking in: ]

Thanks Debra. Some days I just feel like crying because I just don't know what to do. She won't eat much, or only in spurts. She is picky about what she eats. She is losing weight. I feel like I'm trying to stop a freight train from rolling down hill. Thanks for the support. I just needed to vent. Signing off. Thanks again for your kind words.

Wednesday July 9, 2008 4:51 outside looking in

4:51

[Comment From diane rdiane r: ]

thanks, sounds like what is most important is connection, meaning, love

Wednesday July 9, 2008 4:51 diane r

4:52

[Comment From brian sandrobrian sandro: ]

I can't help comparing your journey to Tim Russert's recent passing. Is there some comfort in your being able to make peace, say goodbye, etc? Just want to let you know how wonderful and courageous so many of us think you are

Wednesday July 9, 2008 4:52 brian sandro

4:52

[Comment From MargaretMargaret: ]

I'm scared of the last days, the last goodbye. My husband has Stage IV cancer and I don't know how to survive without him.

Wednesday July 9, 2008 4:52 Margaret

4:52

[Comment From sarahsarah: ]

i love your strength . I lost my hubby to pancreatic cancer & my daughter is fighting a brain tumor. I read your blog daily. xoxo

Wednesday July 9, 2008 4:52 sarah

4:53

[Comment From CathiCathi: ]

How often are you in touch with Ted Koppel? By phone or visits?

Wednesday July 9, 2008 4:53 Cathi

4:53

[Comment From Mary Sirian PetersonMary Sirian Peterson: ]

LeRoy~How much longer do you think you will be able to do your Blog? I am so grateful, for all you have done, for myself, and zillions of others:) Bless you, LeRoy!

Wednesday July 9, 2008 4:53 Mary Sirian Peterson

4:53

[Comment From BarbaraBarbara: ]

You touched on this earlier today with Ted Koppel, but do you believe in "miraculous" cures connected to one's faith in God?

Wednesday July 9, 2008 4:53 Barbara

4:53

[Comment From GuestGuest: ]

What is the rudest thing someone has said to you since diagnosis about your cancer?

Wednesday July 9, 2008 4:53 Guest

4:54

[Comment From mikemike: ]

If you had a heart attack would you want to be helped by doctors to survive it or to not resusitate.

Wednesday July 9, 2008 4:54 mike

4:54

[Comment From BritBrit: ]

Is there a song that really gets to you right now? The Remedy from Jason Mraz is one that I still have trouble listening too, do you have a song like that?

Wednesday July 9, 2008 4:54 Brit

4:54

[Comment From SusanSusan: ]

I have read your blog from the beginning. Thank you for everything Leroy, you will be missed more than you know

Wednesday July 9, 2008 4:54 Susan

4:54

[Comment From JohnJohn: ]

Will you submit an essay to "This I Believe"?

Wednesday July 9, 2008 4:54 John

4:54

[Comment From diane rdiane r: ]

"cancer gives you time to say goodbye"--but you have used the time, some just avoid that contact and communication

Wednesday July 9, 2008 4:54 diane r

4:54

[Comment From LisaLisa: ]

there probably IS a mind body connection, BUT it is biology after all and picking a fight undergoing cancer treatment. HOW MANY HERE ARE IN CLINICAL TRIALS?

Wednesday July 9, 2008 4:54 Lisa

4:55

[Comment From hilaryhilary: ]

what is your one biggest pleasure of your life now...other than your blog?

Wednesday July 9, 2008 4:55 hilary

4:55

[Comment From Kim ForesterKim Forester: ]

Someone else asked where you find your (inner) strength -- ??

Wednesday July 9, 2008 4:55 Kim Forester

4:56

[Comment From PatPat: ]

By the way, your show today reminded me to stop and schedule my colonoscopy, which I've been putting off. Did it a few minutes ago. Did you ever think it coudln't happen to you? How long did it take for you to believe it after the doctor told you what you had? (I remember feeling disbelief for a few days)

Wednesday July 9, 2008 4:56 Pat

4:56

[Comment From GayleGayle: ]

How did you meet Laurie?

Wednesday July 9, 2008 4:56 Gayle

4:57

[Comment From charlenecharlene: ]

are you still angry? It took the longest to jump that hurdle..to acceptance when my husband had pancreatic CA..I like knowing you are giving CA a "hit" now and then..love and klenex. work wonders....some days, the only things to hang on to....

Wednesday July 9, 2008 4:57 charlene

4:57

[Comment From EllenEllen: ]

As an oncology nurse, I've learned a lot from reading, & sometimes contributing, to your blog. I've referred patients & colleagues to your blog for the learning & insight to be gained. Thank you.

Wednesday July 9, 2008 4:57 Ellen

4:57

[Comment From Debra from New HampshireDebra from New Hampshire: ]

Leroy & friends: thanks for a great afternoon. See you in the AM on the blog. signing off

Wednesday July 9, 2008 4:57 Debra from New Hampshire

4:57

[Comment From diane rdiane r: ]

have you viewed the youtube "last lecture" by a man dying

Wednesday July 9, 2008 4:57 diane r

4:57

[Comment From j.k.j.k.: ]

not sure how to ask this properly: How or what is your greatest tool that allows you to look forward to tomorrow? And how can someone who's part of support circle provide this or something similar?

Wednesday July 9, 2008 4:57 j.k.

4:57

[Comment From MinaMina: ]

Cancer trials are good - I am in one - but again - the funding for these has been restrictive to many of us. The war is against Cancer....it should be recognized and handled accordingly. What do you think of "stand up to Cancer"

Wednesday July 9, 2008 4:57 Mina

4:58

[Comment From SteveSteve: ]

Any last things you want to accomplish?

Wednesday July 9, 2008 4:58 Steve

4:58

[Comment From GuestGuest: ]

I agree with you about everyone being stronger than they realize - I have stage IV colon cancer and people seem to think I'm so strong - I'm just doing what the doctors tell me - I'm not doing anything special

Wednesday July 9, 2008 4:58 Guest

4:58

[Comment From Allecia from HersheyAllecia from Hershey: ]

Would you consider a book to

Wednesday July 9, 2008 4:58 Allecia from Hershey

4:58

[Comment From francescafrancesca: ]

on the Disc Health channel Laurie mentioned that "she was not going to participate " on the blog ( or something like this- sorry - I was very deep into chemo)). .but she has and it has been wonderful to hear from her . .what changed her mind?

Wednesday July 9, 2008 4:58 francesca

4:58

[Comment From BritBrit: ]

Leroy and Laurie, thank you both for sharing and helping. The blog means so much to me and I share it with everyone I encounter from our world.

Wednesday July 9, 2008 4:58 Brit

4:58

[Comment From MaryMary: ]

How is Laurie coping? What does she do to help her cope?

Wednesday July 9, 2008 4:58 Mary

4:59

[Comment From PatPat: ]

Tell us about how Lorrie is able to provide you with all the support? Who or what is her source of strength?

Wednesday July 9, 2008 4:59 Pat

4:59

[Comment From johnjohn: ]

How is Laurie doing? I am the care giver for my wife with stage 4 breast cancer and this is so very difficult to deal with

Wednesday July 9, 2008 4:59 john

4:59

[Comment From rgrg: ]

Did you go to a "top" cancer institute? if not, did you consider it?

Wednesday July 9, 2008 4:59 rg

4:59

[Comment From CathiCathi: ]

Finally, I think the answer to world peace is in individual lives...as each of us becomes more aware of the preciousness of our own lives and others. Your blog has the seeds of world peace in it.

Wednesday July 9, 2008 4:59 Cathi

4:59

[Comment From Elyse AlomarElyse Alomar: ]

Leroy, how will you possibly be able to answer all these questions?!

Wednesday July 9, 2008 4:59 Elyse Alomar

4:59

[Comment From bradybrady: ]

This is a personal question - you don't have to answer - why don't you go back on chemo?

Wednesday July 9, 2008 4:59 brady

4:59

[Comment From Tina from Alton, ILTina from Alton, IL: ]

i know what you are saying

Wednesday July 9, 2008 4:59 Tina from Alton, IL

5:00

[Comment From bradybrady: ]

Your blog is so important to me. so many times you say things I am also thinking.

Wednesday July 9, 2008 5:00 brady

5:00

[Comment From MargaretMargaret: ]

Thank you for sharing your journey with us.

Wednesday July 9, 2008 5:00 Margaret

5:00

[Comment From KathleenKathleen: ]

Leroy-My husband died in 2006 after a 6 month batlle with multiple myeloma. Listening to you so much reminds me of his journey. He had a great sense of humor and reality right up until the end.

Wednesday July 9, 2008 5:00 Kathleen

5:00

[Comment From diane rdiane r: ]

thanks for using your skill and creativity to communicate. Obivious with 30,000 here needing and wanting more dialogue about illness and dying

Wednesday July 9, 2008 5:00 diane r

5:00

[Comment From Tina from Alton, ILTina from Alton, IL: ]

Margaret-I understand what you are saying. I dread that too and do not know what to do

Wednesday July 9, 2008 5:00 Tina from Alton, IL

5:00

[Comment From JeanneJeanne: ]

I was diagnosed with lung cancer 15 months ago, one large tumor. Now stable: at some scans minimally smaller, other scans minimally larger.

Wednesday July 9, 2008 5:00 Jeanne

5:00

[Comment From MarthaMartha: ]

Thanks so much for your service. I hope you will continue as long as you have the strength to share. It makes it better for all of us.

Wednesday July 9, 2008 5:00 Martha

5:00

[Comment From francescafrancesca: ]

bye everyone

Wednesday July 9, 2008 5:00 francesca

5:00

[Comment From hilaryhilary: ]

thank you, all!

Wednesday July 9, 2008 5:00 hilary

5:00

[Comment From JustinJustin: ]

THANK YOU LEROY AND NPR!

Wednesday July 9, 2008 5:00 Justin

5:00

[Comment From GuestGuest: ]

Many many thanks to a great man.

Wednesday July 9, 2008 5:00 Guest

5:01

Andy Carvin:

Thanks again to everyone who participated. We'll post an archive of the audio and the chat thread on the blog as soon as we can. Bye everyone!

Wednesday July 9, 2008 5:01 Andy Carvin

5:01

[Comment From NancyNancy: ]

I enjoy reading your blog.

Wednesday July 9, 2008 5:01 Nancy

5:01

[Comment From SusanSusan: ]

This program with Elizabeth and Leroy was inspiring and beautiful.

Wednesday July 9, 2008 5:01 Susan

5:01

[Comment From Barbara GounBarbara Goun: ]

Leroy- You are apreciated by the many of us who are lucky to travel this road with you

Wednesday July 9, 2008 5:01 Barbara Goun

5:02

[Comment From DianaDiana: ]

Andy, you did a great job, as did the guy who was reading the questions (assuming it wasn't you)..THANKS!!!!

Wednesday July 9, 2008 5:02 Diana

5:02

[Comment From PamPam: ]

Thank you Leroy for your precious time. You are a true earth angel to all.

Wednesday July 9, 2008 5:02 Pam

5:03

[Comment From MargieMargie: ]

Dear Mr. Sievers - I just want you to know that I'll be praying for you. I was just diagnosed with Stage IV colon cancer 3 months ago. I'm just beginning my journey. I listened some today and read some of your blog and it has helped me. thank you.

Wednesday July 9, 2008 5:03 Margie

5:03

[Comment From SusanSusan: ]

THank you both for sharing with the rest of us. You are both truly beautiful human beings.

Wednesday July 9, 2008 5:03 Susan

5:03

Andy Carvin:

Thanks again everyone - take care!

Wednesday July 9, 2008 5:03 Andy Carvin

5:04